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OTQ923

Phase 1

Sickle Cell Disease | Monoclonal antibody | Hematology |Novartis AG|Last Updated: Oct 3, 2025

Success Probability
Approval Probability 71%
TA Base Rate26%
Adjusted LOA41%
ML RiskLOW_RISK
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Market & Valuation
rNPV $3.2B
Market Size $9.4B
Revenue Basis $1.6B
Competitors 6
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Trial Design
UNCONTROLLED
Total Trials1
Total Enrollment4
FDA Designations
No designations recorded
Clinical Trials (1)
NCT IDTitlePhaseStatusEnrollmentVelocityDesignStartCompletionLast UpdatedSitesCountries
NCT06155500Long-term Follow-up (LTFU) of Patients Treated With Genome-edited Autologous Hematopoietic Stem and Progenitor Cells (HSPC)PHASE1 ACTIVE NOT_RECRUITING 4Apr 16, 2024Jan 11, 2039Oct 3, 20253 United States
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Study Endpoints
Primary Endpoints
Number of participants with delayed adverse events that are suspected to be related to previous OTQ923 therapy
Up to 15 years

Number of participants with delayed adverse events including new secondary malignancies, new incidence or exacerbation of a prior autoimmune disorder, new incidence or exacerbation of a prior rheumatologic disorder, new hematologic disorder, and other adverse events considered to be related to OTQ923 therapy.

Secondary Endpoints
Persistence of fetal hemoglobin expression
Up to 15 years
WBC chimerism in peripheral blood
5 years
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Study Design & Arms
AllocationNA
MaskingNONE
ModelSINGLE_GROUP
PurposeTREATMENT
Treatment Arms
ArmTypeDescription
OTQ923EXPERIMENTALPatients were administered OTQ923 while enrolled on the treatment protocol (CADPT03A12101). Patients enrolled on this LTFU study will not be administered any study treatment.
Interventions
NameTypeDescription
OTQ923BIOLOGICALThere is no treatment allocation. Patients administered were OTQ923 while enrolled on the treatment protocol CADPT03A12101 (NCT04443907)
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Eligibility Criteria
Age Range18 Years — 100 Years
SexALL
Healthy VolunteersNo
Study Sites3

Inclusion Criteria: 1. Patients must have received gene therapy treatment from the parent treatment protocol (CADPT03A12101). 2. Patients must provide informed consent prior to their entry into this study. Exclusion Criteria: 1\. Completion of less than 1 year of safety follow-up in the treatment...

Countries:United States
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Recent Changes (Last 90 Days)
LOWMay 26, 2026NCT06155500primaryCompletionDate: changed
LOWMay 24, 2026NCT06155500studyFirstPostDate: changed