Recent Updates
Recently added Catalysts

Botaretigene sparoparvovec

Phase 3

Retinitis Pigmentosa | Gene therapy | Ophthalmology |Johnson & Johnson|Last Updated: Aug 28, 2026

Target and mechanism

ModalityGene therapy

Also known as AAV5-hRKp.RPGR, Genetic: AAV5-hRKp.RPGR Intermediate Dose, Genetic: AAV5-hRKp.RPGR Low Dose, Genetic: AAV5-hRKp.RPGR

Success Probability

Subscribe to view

Market & Valuation

Subscribe to view

Trial Design

Double-BlindCONTROLLED
Total Trials1
Total Enrollment4

FDA Designations

No designations recorded

Clinical trial landscape

Botaretigene sparoparvovec · 4 trials · 2 indications

Phase 3 3Phase 2 1
NCT05926583A Study of AAV5-hRKp.RPGR for the Treatment of Japanese Participants With X-linked Retinitis PigmentosaRetinitis Pigmentosa
ACTIVE NOT_RECRUITING4 Analytics
NCT04671433Gene Therapy Trial for the Treatment of X-linked Retinitis Pigmentosa Associated With Variants in the RPGR GeneX-Linked Retinitis Pigmentosa
COMPLETED105 Analytics
NCT04794101Follow-up Gene Therapy Trial for the Treatment of X-linked Retinitis Pigmentosa Associated With Variants in the RPGR GeneX-Linked Retinitis Pigmentosa
ACTIVE NOT_RECRUITING97 Analytics
PHASE3ACTIVE NOT_RECRUITING
A Study of AAV5-hRKp.RPGR for the Treatment of Japanese Participants With X-linked Retinitis Pigmentosa
Retinitis PigmentosaUnlock trial analytics
PHASE3COMPLETED
Gene Therapy Trial for the Treatment of X-linked Retinitis Pigmentosa Associated With Variants in the RPGR Gene
X-Linked Retinitis PigmentosaUnlock trial analytics
PHASE3ACTIVE NOT_RECRUITING
Follow-up Gene Therapy Trial for the Treatment of X-linked Retinitis Pigmentosa Associated With Variants in the RPGR Gene
X-Linked Retinitis PigmentosaUnlock trial analytics

Study Endpoints

Primary Endpoints

Number of Participants with Adverse Event (AEs)
Up to 60 Months

An AE is any untoward medical occurrence in a clinical study participant administered a investigational or non-investigational medicinal product. An AE does not necessarily have a causal relationship with the treatment.

Number of Participants with Abnormalities in Clinical Laboratory Assessments
Up to 60 Months

Number of participants with abnormalities in clinical laboratory assessment (hematology and serum chemistry) will be reported.

Change From Baseline to Week 52 in Vision-guided Mobility Assessment (VMA) as Measured by the Ability of the Participant to Navigate Through a VMA Maze
From Baseline to 52 Weeks

Change from baseline to Week 52 in VMA as measured by the ability of the participant to navigate through a VMA maze.

Number of Participants with Ocular and Non-ocular Adverse Events
Day 1 - Month 60

Number of participants with ocular and non-ocular adverse events will be assessed.

Number of Participants With Abnormalities in Laboratory Assessments
Day 1 - Month 60

Number of participants with abnormalities in laboratory assessments will be assessed.

Change From Baseline in Best Corrected Visual Acuity (BCVA) by Early Treatment Diabetic Retinopathy Study (ETDRS) Chart Letter Score in Monocular Assessment
From Baseline - Month 60

Change from baseline in BCVA by ETDRS chart letter score in monocular assessment will be assessed.

Change From Baseline in Low Luminance Visual Acuity by ETDRS Chart Letter Score in Monocular Assessment
From Baseline- Month 60

Change from baseline in low luminance visual acuity by ETDRS chart letter score in monocular assessment will be assessed.

Number of Participants With Adverse Events (AE)
From baseline up to 5.5 years

An AE is any untoward medical occurrence in a clinical study participant administered a pharmaceutical (investigational or non investigational) product. An AE does not necessarily have a causal relationship with the intervention. An AE can be any unfavorable and unintended sign (including an abnormal finding), symptom, or disease temporally associated with the use of a medicinal (investigational or non investigational) product, whether or not related to that medicinal (investigational or non investigational) product.

Change from Baseline in Best Corrected Visual Acuity (BCVA) by Early Treatment Diabetic Retinopathy Study (ETDRS) Chart Letter Scores
Baseline, Months 12, 24, 36, 48 and 60

Change from baseline in BCVA by ETDRS chart letter scores in monocular assessment of the second treated eye will be assessed. BCVA was measured using the ETDRS Scale (ranging from 0 to 100 letters) in the study eye. An increase in the number of letters read correctly means that vision has improved and vice-versa.

Change from Baseline in Low Luminance Visual Acuity (LLVA) by ETDRS Chart Letter Score
Baseline, Months 12, 24, 36, 48 and 60

Change in LLVA by ETDRS chart letter scores from baseline in monocular assessment of second treated eye will be assessed. Visual function assessments included LLVA assessment in each eye by ETDRS letters. The letter score ranges from 0 (worse score) to 100 (best score), and a gain in LLVA from baseline indicates an improvement in visual acuity.

Secondary Endpoints

Change From Baseline in Low Luminance Visual Acuity by Early Treatment Diabetic Retinopathy Study (ETDRS) Chart Letter Score in Monocular Assessment at Week 52
Baseline - Week 52
Change From Baseline in Best Corrected Visual Acuity (BCVA) by Early Treatment Diabetic Retinopathy Study Chart Letter Score in Monocular Assessment at Week 52
Baseline - Week 52
Change From Baseline in Low Luminance Visual Acuity by Early Treatment Diabetic Retinopathy Study Chart Letter Score in Worse-seeing Eye at Week 52
Baseline - Week 52
Unlock Study Endpoints

Study Design & Arms

AllocationNON_RANDOMIZED
MaskingQUADRUPLE
ModelPARALLEL
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
Group 1: AAV5-hRKp.RPGR Low DoseEXPERIMENTALParticipants will receive bilateral subretinal administration of AAV5-hRKp.RPGR low dose, with surgical delivery to the 2 eyes performed within 7 to 21 days apart.
Group 2: AAV5-hRKp.RPGR High DoseEXPERIMENTALParticipants will receive bilateral subretinal administration of AAV5 hRKp.RPGR high dose, with surgical delivery to the 2 eyes performed within 7 to 21 days apart.
Experimental - Immediate TreatmentEXPERIMENTALIntermediate dose.
Deferred TreatmentOTHERDeferred Treatment
Experimental Immediate TreatmentEXPERIMENTALLow dose.
Deferred Treatment From MGT-RPGR-021 of Intermediate DoseEXPERIMENTALDeferred treatment
Already Treated in MGT-RPGR-021EXPERIMENTALAlready treated
Deferred Treatment From MGT-RPGR-021 Low DoseEXPERIMENTALDeferred treatment
Cohort 1EXPERIMENTALParticipants will receive a dose of AAV5 hRKp.RPGR under the retina (low-dose or intermediate-dose) on Day 1 depending on the dosage administered in study MGT009 (NCT03252847) in the past. After receiving the treatment, participants will be assessed for safety.
Cohort 2EXPERIMENTALParticipants will receive the treatment dose of AAV5 hRKp.RPGR under the retina (low-dose or intermediate-dose) on Day 1 in the second eye once the safety will be determined in Cohort 1.
Cohort 3OTHERThe participants who are not willing to undergo surgery or are not eligible for surgery will be assessed in this cohort. They will be assessed yearly until 5 years after their initial eye surgery in previous study MGT009.

Interventions

NameTypeDescription
AAV5-hRKp.RPGRGENETICAAV5-hRKp.RPGR will be administered by subretinal injection using a standardized surgical procedure.
Genetic: AAV5-hRKp.RPGRBIOLOGICALBilateral, sub-retinal administration of AAV5-hRKp.RPGR - immediate treatment group
Genetic: AAV5-hRKp.RPGR Intermediate DoseBIOLOGICALBilateral, subretinal administration of AAV5-hRKp.RPGR - deferred treatment group
Genetic: AAV5-hRKp.RPGR Low DoseBIOLOGICALBilateral, subretinal administration of AAV5-hRKp.RPGR - deferred treatment group
No intervention (Follow-Up assessment)OTHERParticipants will not receive any intervention and will undergo follow-up assessment.
Unlock Study Design Details

Eligibility Criteria

Age Range5 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites1

Inclusion Criteria: * Participants who are Japanese male or female aged 5 years or older * Participants diagnosed as X-linked retinitis pigmentosa (XLRP) (generalized rod-cone dystrophy) associated with pathogenic or likely pathogenic variants in the retinitis pigmentosa guanosine triphosphatase re...

Countries:JapanUnited StatesBelgiumCanadaDenmarkFranceIsraelItalyNetherlandsSpainSwitzerlandUnited Kingdom
Unlock Eligibility Criteria

Recent Changes (Last 90 Days)

LOWAug 28, 2026NCT05926583lastUpdatePostDate: changed
LOWAug 28, 2026NCT04794101lastUpdatePostDate: changed
LOWAug 28, 2026NCT06646289lastUpdatePostDate: changed
LOWAug 28, 2026NCT05926583lastUpdatePostDate: changed
LOWAug 28, 2026NCT04794101lastUpdatePostDate: changed
LOWAug 28, 2026NCT06646289lastUpdatePostDate: changed
LOWJul 6, 2026NCT05926583lastUpdatePostDate: changed
LOWJul 6, 2026NCT04794101lastUpdatePostDate: changed
LOWJul 6, 2026NCT06646289lastUpdatePostDate: changed
LOWJul 6, 2026NCT05926583lastUpdatePostDate: changed
LOWJul 6, 2026NCT04794101lastUpdatePostDate: changed
LOWJul 6, 2026NCT06646289lastUpdatePostDate: changed