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Setmelanotide

Phase 3

Hypothalamic Obesity | Small molecule | Endocrine |Rhythm Pharmaceuticals, Inc.|Last Updated: Jul 15, 2026

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Trial Design
RandomizedDouble-BlindPLACEBO_CONTROLLEDDMC
Total Trials3
Total Enrollment200
FDA Designations
ORPHAN_DRUG
Clinical trial landscape

Setmelanotide · 19 trials · 25 indications

Phase 3 9Phase 2 8Phase 1 2
NCT06760546A Trial of Setmelanotide in Patients With Congenital Hypothalamic Obesity (Sub-study of NCT05774756)Hypothalamic Obesity
RECRUITING39 Analytics
NCT06596135Open-Label Extension Study of SetmelanotideObesity Associated With Defects in Leptin-melanocortin Pathway
COMPLETED28 Analytics
NCT05774756A Trial of Setmelanotide in Acquired Hypothalamic ObesityHypothalamic Obesity
ACTIVE NOT_RECRUITING143 Analytics
NCT04966741Setmelanotide in Pediatric Participants With Rare Genetic Diseases of ObesityBardet-Biedl Syndrome
COMPLETED12 Analytics
NCT05194124Phase 3 Crossover Trial of Two Formulations of Setmelanotide in Participants With Specific Gene Defects in the MC4R PathwayBardet-Biedl Syndrome
COMPLETED19 Analytics
NCT05093634EMANATE: A Study of Setmelanotide in Patients With Specific Gene Variants in the MC4R PathwayObesity
ACTIVE NOT_RECRUITING296 Analytics
NCT03746522Setmelanotide (RM-493), Melanocortin-4 Receptor (MC4R) Agonist, in Bardet-Biedl Syndrome (BBS) and Alström Syndrome (AS) Participants With Moderate to Severe ObesityBardet Biedl Syndrome (BBS)
COMPLETED52 Analytics
NCT03287960Setmelanotide for the Treatment of Leptin Receptor (LEPR) Deficiency ObesityLeptin Receptor Deficiency Obesity
COMPLETED15 Analytics
NCT02896192Setmelanotide for the Treatment of Early-Onset Pro-Opiomelanocortin (POMC) Deficiency ObesityPro-opiomelanocortin (POMC) Deficiency Obesity
COMPLETED15 Analytics
PHASE3RECRUITING
A Trial of Setmelanotide in Patients With Congenital Hypothalamic Obesity (Sub-study of NCT05774756)
Hypothalamic ObesityUnlock trial analytics
PHASE3COMPLETED
Open-Label Extension Study of Setmelanotide
Obesity Associated With Defects in Leptin-melanocortin PathwayUnlock trial analytics
PHASE3ACTIVE NOT_RECRUITING
A Trial of Setmelanotide in Acquired Hypothalamic Obesity
Hypothalamic ObesityUnlock trial analytics
PHASE3COMPLETED
Setmelanotide in Pediatric Participants With Rare Genetic Diseases of Obesity
Bardet-Biedl SyndromeUnlock trial analytics
PHASE3COMPLETED
Phase 3 Crossover Trial of Two Formulations of Setmelanotide in Participants With Specific Gene Defects in the MC4R Pathway
Bardet-Biedl SyndromeUnlock trial analytics
PHASE3ACTIVE NOT_RECRUITING
EMANATE: A Study of Setmelanotide in Patients With Specific Gene Variants in the MC4R Pathway
ObesityUnlock trial analytics
PHASE3COMPLETED
Setmelanotide (RM-493), Melanocortin-4 Receptor (MC4R) Agonist, in Bardet-Biedl Syndrome (BBS) and Alström Syndrome (AS) Participants With Moderate to Severe Obesity
Bardet Biedl Syndrome (BBS)Unlock trial analytics
PHASE3COMPLETED
Setmelanotide for the Treatment of Leptin Receptor (LEPR) Deficiency Obesity
Leptin Receptor Deficiency ObesityUnlock trial analytics
PHASE3COMPLETED
Setmelanotide for the Treatment of Early-Onset Pro-Opiomelanocortin (POMC) Deficiency Obesity
Pro-opiomelanocortin (POMC) Deficiency ObesityUnlock trial analytics
Study Endpoints
Primary Endpoints
Mean % change in BMI
From Baseline after 26 weeks on a therapeutic regimen
Safety and tolerability of setmelanotide assessed by frequency and severity of Adverse Events (AEs) and Serious Adverse Events (SAEs)
Up to 3 years
Pivotal Cohort: Mean Percent Change From Baseline in Body Mass Index (BMI) After 52 Weeks on a Therapeutic Regimen
Baseline, after approximately 52 Weeks on a Therapeutic Regimen (up to approximately 60 weeks)

BMI was calculated as weight (kg)/height (m\^2). Least square (LS) mean and standard error (SE) were calculated using analysis of covariance (ANCOVA) model.

Percentage of Participants With Greater Than or Equal to (≥) 0.2 Reduction of BMI Z-Score From Baseline to Week 52
Baseline up to Week 52

A "responder" was defined as a decrease from baseline to 52 weeks in the participant's BMI z-score of ≥0.2. BMI was calculated using participant's weight and height assessments, using the following formula: BMI = kg/m\^2. The BMI Z-scores were based on the World Health Organization's Child Growth Standards 2007 and indicated the number of standard deviations away from the mean. A Z-score of 0 was equal to the mean of a reference population (i.e., healthy, age and sex-matched individuals). A decrease of BMI Z-score (\< 0) indicated a reduction in BMI from Baseline whereas an increase of BMI-Z score (\> 0) indicated an increase in BMI from Baseline. Baseline was defined as the most recent measurement prior to the first administration of study drug.

Mean Percent Change From Baseline in BMI
Baseline, Week 52

Mean percent change from baseline to Week 52 in BMI was reported. BMI was calculated using participant's weight and height assessments, using the following formula: BMI = kg/m\^2. Baseline was defined as the most recent measurement prior to the first administration of study drug.

Maximum Drug Concentration (Cmax) of Setmelanotide After QD Administration in the Run-in Period
Pre-dose (0 hour) and at 0.5, 1, 2, 3, 4, 6, 8, 12, and 24 hours postdose at Week -1

Maximum drug concentration determined directly from individual concentration-time data.

Cmax of Setmelanotide After QW Administration
Pre-dose (0 hour) and at 0.5, 1, 2, 3, 4, 6, 8, 12, 24, 48, 72, 96, 120, and 168 hours postdose at Week 14

Maximum drug concentration determined directly from individual concentration-time data. Data are reported by dose level (treatment regimen) in the OL Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Time to Maximum Plasma Concentration (Tmax) of Setmelanotide After QD Administration in the Run-in Period
Pre-dose (0 hour) and at 0.5, 1, 2, 3, 4, 6, 8, 12, and 24 hours postdose at Week -1

Maximum drug concentration determined directly from individual concentration-time data.

Tmax of Setmelanotide After QW Administration
Pre-dose (0 hour) and at 0.5, 1, 2, 3, 4, 6, 8, 12, 24, 48, 72, 96, 120, and 168 hours postdose at Week 14

Maximum drug concentration determined directly from individual concentration-time data. Data are reported by dose level (treatment regimen) in the OL Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Mean Trough Plasma Concentration (Ctrough) of Setmelanotide After QD or QW Administration at Week 1
30 minutes predose at Week 1

Ctrough is concentration at the end of the dosing interval, prior to subsequent dose administration. Data are reported by dose level (treatment regimen) in the DB Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Mean Setmelanotide Ctrough After QD or QW Administration at Week 5
30 minutes predose at Week 5

Ctrough is concentration at the end of the dosing interval, prior to subsequent dose administration. Data are reported by dose level (treatment regimen) in the DB Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Mean Setmelanotide Ctrough After QD or QW Administration at Week 9
30 minutes predose at Week 9

Ctrough is concentration at the end of the dosing interval, prior to subsequent dose administration. Data are reported by dose level (treatment regimen) in the DB Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Mean Setmelanotide Ctrough After QD or QW Administration at Week 18
30 minutes predose at Week 18

Ctrough is concentration at the end of the dosing interval, prior to subsequent dose administration. Data are reported by dose level (treatment regimen) in the DB Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Mean Setmelanotide Ctrough After QD or QW Administration at Week 22
30 minutes predose at Week 22

Ctrough is concentration at the end of the dosing interval, prior to subsequent dose administration. Data are reported by dose level (treatment regimen) in the DB Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Mean Setmelanotide Ctrough After QD or QW Administration at Week 27
30 minutes predose at Week 27

Ctrough is concentration at the end of the dosing interval, prior to subsequent dose administration. Data are reported by dose level (treatment regimen) in the DB Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Area Under the Plasma Concentration-Time Curve Over the Dosing Interval (AUC0-tau) of Setmelanotide After QD Administration in the Run-in Period
Pre-dose (0 hour) and at 0.5, 1, 2, 3, 4, 6, and 8 hours postdose at Week -1

AUC0-tau was recorded from collected blood samples.

AUC0-tau of Setmelanotide After QD Administration in the Run-in Period
Pre-dose (0 hour) and 0.5, 1, 2, 6, 8, 12, 24, 48, 72, 96, 120, and 168-hours postdose at Week 14

AUC0-tau was recorded from collected blood samples. Data are reported by dose level (treatment regimen) in the OL Period and dosing sequence (QD-QD-QW or QD-QW-QW).

Difference in mean change in body weight in patients treated with setmelanotide compared to placebo, assessed as percent change in BMI
Baseline to 52 weeks
Percentage of Participants (≥12 Years of Age at Baseline) Who Reached ≥10% Weight Loss Threshold After 1 Year (Period 2): Pivotal Cohort
52 weeks

The percentage of participants (≥12 years of age at baseline) who achieved a ≥10% reduction from baseline in body weight at Period 2 or after 52 weeks of treatment with setmelanotide were analyzed. There was a 14-week placebo-controlled period at the beginning of the trial. After completion of the placebo-controlled period, all participants from the placebo group switched to setmelanotide treatment. The placebo group was integrated into the 52-week analysis so that the participants who received placebo, had 52 weeks of setmelanotide treatment after the first dose of "active" treatment. Placebo participants were also included in this analysis.

Percentage of Participants Who Reached ≥10% Weight Loss Threshold After 1 Year (Pivotal Cohort)
Week 52

The percentage of participants who met the ≥10% weight loss threshold (responders) after approximately Week 52 (\~1 year) of treatment were analyzed.

Frequency and severity of adverse events (AEs)
Baseline to Week 52
Stage 1: Number of Participants by Genotype Who Demonstrated a Significant Clinically Meaningful Response to Setmelanotide at the End of Stage 1
Baseline to Week 16

BMI was calculated using participant's weight and height assessments, using the following formula: BMI = Kilogram (kg)/ square meter (m\^2). A significant clinically meaningful response was defined as achieving a ≥5% reduction in BMI from Baseline. Data are provided for overall and according to participants with specified primary gene. Baseline was defined as the last available measurement taken prior to the start of treatment Stage 1 administration.

Percentage of Participants With ≥ 5% Reduction in BMI From Baseline After 16 Weeks of Setmelanotide Treatment
Baseline to 16 weeks

BMI was calculated using participant's weight and height assessments, using the following formula: BMI = kg/m\^2. Baseline was defined as the most recent measurement prior to the first administration of study drug.

Number of Participants With Treatment-Emergent Adverse Events (TEAEs)
From first dose up to 5.6 years

An adverse event (AE) was any untoward medical occurrence in a clinical study participant, temporally associated with the use of a study intervention, whether or not considered related to the study intervention. A TEAE was defined as any AE that began or worsened in intensity on or after the date of the first administration of study drug.

Fasting Triglycerides (TG) levels
12 to 20 weeks

The mean change from baseline in fasting triglycerides after setmelanotide treatment.

Number of Participants With ≥ 5% Reduction in Body Weight From Baseline After 3 Months of Setmelanotide Treatment
Baseline to Month 3
Number of Participants Who Experienced a Treatment-Emergent Adverse Event (TEAE) - Period 2
Days 15 to 41

An adverse event (AE) was any untoward medical occurrence in a clinical trial participant, temporally associated with the use of study treatment, whether or not considered related to the study treatment. An AE is considered to be treatment-emergent if the onset date/time is during or after administration of double-blind study drug or, in the event that onset time precedes double-blind study drug administration, the AE increases in severity during or after administration of double-blind study drug; in either case through 1-week after the last treatment dose. A serious adverse event (SAE) was any untoward medical occurrence that, at any dose: * Resulted in death; * Was life-threatening; * Required inpatient hospitalization or prolongation of existing hospitalization; * Resulted in persistent disability/incapacity; * Was a congenital anomaly/birth defect

Number of Participants Who Experienced a TEAE - Period 3
Days 42 to 55

An AE was any untoward medical occurrence in a clinical trial participant, temporally associated with the use of study treatment, whether or not considered related to the study treatment. An AE is considered to be treatment-emergent if the onset date/time is during or after administration of double-blind study drug or, in the event that onset time precedes double-blind study drug administration, the AE increases in severity during or after administration of double-blind study drug; in either case through 1-week after the last treatment dose. An SAE was any untoward medical occurrence that, at any dose: * Resulted in death; * Was life-threatening; * Required inpatient hospitalization or prolongation of existing hospitalization; * Resulted in persistent disability/incapacity; * Was a congenital anomaly/birth defect

Number of Participants Who Experienced a TEAE - Period 4
Days 56 to 69

An AE was any untoward medical occurrence in a clinical trial participant, temporally associated with the use of study treatment, whether or not considered related to the study treatment. An AE is considered to be treatment-emergent if the onset date/time is during or after administration of double-blind study drug or, in the event that onset time precedes double-blind study drug administration, the AE increases in severity during or after administration of double-blind study drug; in either case through 1-week after the last treatment dose. An SAE was any untoward medical occurrence that, at any dose: * Resulted in death; * Was life-threatening; * Required inpatient hospitalization or prolongation of existing hospitalization; * Resulted in persistent disability/incapacity; * Was a congenital anomaly/birth defect

Mean Body Weight - Period 2
Baseline (Day 15)
Percent Change From Baseline in Body Weight - Period 2
Baseline (Day 15) and Day 42
Overall Score of Prader-Willi Syndrome (PWS) Hyperphagia Questionnaire - Period 2
Baseline (Day 15)

The hyperphagia questionnaire is a 10-item instrument designed to measure food-related preoccupations and problems in PWS, as well as the severity of these concerns. Three factors identified from this questionnaire are: Hyperphagic Drive, Hyperphagic Behaviors, and Hyperphagic Severity. Items are rated by care providers on a 5-point scale (1=not a problem to 5=a severe and/or frequent problem). Raw scores for each factor were used in data analyses, and the 3 domains were summed for an overall summary index of hyperphagia. Possible scores on the questionnaire range from a minimum score of 10 (no hyperphagia) to a maximum score of 50 (greater hyperphagia).

Percent Change From Baseline in Overall Score of Prader-Willi Syndrome (PWS) Hyperphagia Questionnaire - Period 2
Baseline (Day 15) and Day 42

The hyperphagia questionnaire is a 10-item instrument designed to measure food-related preoccupations and problems in PWS, as well as the severity of these concerns. Three factors identified from this questionnaire are: Hyperphagic Drive, Hyperphagic Behaviors, and Hyperphagic Severity. Items are rated by care providers on a 5-point scale (1=not a problem to 5=a severe and/or frequent problem). Raw scores for each factor were used in data analyses, and the 3 domains were summed for an overall summary index of hyperphagia. Possible scores on the questionnaire range from a minimum score of 10 (no hyperphagia) to a maximum score of 50 (greater hyperphagia). Percent change from baseline in overall score of PWS hyperphagia questionnaire is presented.

Percent Change From Baseline in Body Weight
Baseline and Day 90

The mean percent change from baseline in body weight at Day 90 was analyzed.

Pharmacokinetic Parameter - Peak Plasma Concentration (Cmax)
5 days

The primary objective of this study is to evaluate the PK of a single dose of Setmelanotide administered SC in subjects with varying degrees of renal impairment and that of healthy matched control subjects.

Pharmacokinetic Parameter - Area under the plasma concentration versus time curve (AUC)
5 days

The primary objective of this study is to evaluate the PK of a single dose of Setmelanotide administered SC in subjects with varying degrees of renal impairment and that of healthy matched control subjects.

Body Weight - Stage A
Baseline
Percent Change From Baseline in Body Weight at Week 12 - Stage A
Baseline, Week 12
Body Weight - Stage B
Baseline
Percent Change From Baseline in Body Weight at Week 12 - Stage B
Baseline, Week 12
Body Weight - Stage C
Baseline
Percent Change From Baseline in Body Weight at Week 12 - Stage C
Baseline, Week 12
Number of Participants With Treatment-Emergent Adverse Events (TEAEs) - Stage A
From first dose up to Day 114

An adverse event (AE) was any untoward medical occurrence in a clinical trial participant, temporally associated with the use of study treatment, whether or not considered related to the study treatment. AEs that occurred after the start of study drug administration were considered TEAEs.

Number of Participants With TEAEs - Stage B
From first dose up to Day 114

An AE was any untoward medical occurrence in a clinical trial participant, temporally associated with the use of study treatment, whether or not considered related to the study treatment. AEs that occurred after the start of study drug administration were considered TEAEs.

Number of Participants With TEAEs - Stage C
From first dose up to Day 114

An AE was any untoward medical occurrence in a clinical trial participant, temporally associated with the use of study treatment, whether or not considered related to the study treatment. AEs that occurred after the start of study drug administration were considered TEAEs.

Secondary Endpoints
Proportion of patients with ≥5% reduction in BMI in adult patients (≥18 years of age) or a BMI Z-score reduction of ≥0.2 points in pediatric patients (<18 years of age)
From Baseline after 26 weeks on a therapeutic regimen
Mean change in the weekly average of the daily most hunger score in patients ≥12 years old
From Baseline after 26 weeks on a therapeutic regimen
Proportion of patients with a ≥2 point reduction in the weekly average of the daily most hunger score
From Baseline after 26 weeks on a therapeutic regimen
Unlock Study Endpoints
Study Design & Arms
AllocationRANDOMIZED
MaskingTRIPLE
ModelPARALLEL
PurposeTREATMENT
Treatment Arms
ArmTypeDescription
SetemelanotideEXPERIMENTALRandomized 2:1 (Setmelanotide: Placebo)
PlaceboPLACEBO_COMPARATORRandomized 2:1 (Setmelanotide: Placebo)
Setelanotide (Open-label)EXPERIMENTALOnce daily (QD) subcutaneous injection of setmelanotide
Setmelanotide: PPL GroupEXPERIMENTALParticipants with POMC)/PCSK1/LEPR biallelic mutations collectively referred to as PPL received setmelanotide at a dose of 0.5 milligrams (mg) per day (QD) via SC injection for 52 weeks. The dose was escalated by increments of 0.5 mg every 2 weeks, if tolerated, at the dose escalation visits (Weeks 2, 4, and 6) to a maximum dose of 0.5 to 2.0 mg QD with the maximum dose based on body weight. Following the last dose in this study, participants who were considered likely to benefit from continued setmelanotide treatment and who had completed this trial could be eligible to enter an open-label long-term extension (LTE) trial with setmelanotide.
Setmelanotide: BBS GroupEXPERIMENTALParticipants with BBS received setmelanotide at a dose of 0.5 mg QD via SC injection for 52 weeks. The dose was escalated by increments of 0.5 mg every 2 weeks, if tolerated, at the dose escalation visits (Weeks 2, 4, and 6) to a maximum dose of 0.5 to 2.0 mg QD with the maximum dose based on body weight. Following the last dose in this study, participants who were considered likely to benefit from continued setmelanotide treatment and who had completed this trial could be eligible to enter an open-label long-term extension (LTE) trial with setmelanotide.
Run-in Period: Setmelanotide 2 mg QDEXPERIMENTALParticipants received subcutaneous (SC) injection of 2 mg setmelanotide once daily (QD) for 1 week in the run-in period.
Run-in Period: Setmelanotide 2.5 mg QDEXPERIMENTALParticipants received SC injection of 2.5 mg setmelanotide QD for 1 week in the run-in period.
Run-in Period: Setmelanotide 3 mg QDEXPERIMENTALParticipants received SC injection of 3 mg setmelanotide QD for 1 week in the run-in period.
DB Period: Setmelanotide 20 mg QWEXPERIMENTALParticipants who received 2 mg setmelanotide QD in the run-in period, received SC injection of 20 mg setmelanotide once weekly (QW) and placebo matched to setmelanotide QD for 13 weeks in the DB period.
DB Period: Setmelanotide 25 mg QWEXPERIMENTALParticipants who received 2.5 mg setmelanotide QD in the run-in period, received SC injection of 25 mg setmelanotide QW and placebo matched to setmelanotide QD for 13 weeks in the DB period.
DB Period: Setmelanotide 3 mg QDEXPERIMENTALParticipants who received 3 mg setmelanotide QD in the run-in period, received SC injection of 3 mg setmelanotide QD and placebo matched to setmelanotide QW for 13 weeks in the DB period.
DB Period: Setmelanotide 30 mg QWEXPERIMENTALParticipants who received 3 mg setmelanotide QD in the run-in period, received SC injection of 30 mg setmelanotide QW and placebo matched to setmelanotide QD for 13 weeks in the DB period.
OL Period: Setmelanotide 20 mg QWEXPERIMENTALParticipants who received 2 mg setmelanotide QD in the run-in period and 20 mg setmelanotide QW in the DB period, received SC injection of 20 mg setmelanotide QW for 13 weeks in the OL period.
OL Period: Setmelanotide 25 mg QWEXPERIMENTALParticipants who received 2.5 mg setmelanotide QD in the run-in period and 25 mg setmelanotide QW in the DB period, received SC injection of 25 mg setmelanotide QW for 13 weeks in the OL period.
OL Period: Setmelanotide 30 mg QWEXPERIMENTALParticipants who received 3 setmelanotide QD in the run-in period and 3 mg setmelanotide QD or 30 mg setmelanotide QW in the DB period, received SC injection of 30 mg setmelanotide QW for 13 weeks in the OL period.
POMC or PCSK1 variantEXPERIMENTAL1:1 Randomization
LEPR variantEXPERIMENTAL1:1 Randomization
NCOA1 (SRC1) variantEXPERIMENTAL1:1 Randomization
SH2B1 variantEXPERIMENTAL1:1 Randomization
Setmelanotide (Double-Blind)EXPERIMENTALParticipants received once daily SC injection of setmelanotide for 14 weeks in a double-blind placebo-controlled treatment period (Period 1). Participants ≥16 years of age started on setmelanotide 2.0 mg with dose escalation to 3.0 mg. Participants \<16 years of age started on setmelanotide 1.0 mg with dose escalation to 3.0 mg.
Placebo (Double-Blind)PLACEBO_COMPARATORParticipants received once daily SC injection of placebo (matching setmelanotide) for 14 weeks in a double-blind placebo-controlled treatment period (Period 1).
Setmelanotide (Open-label)EXPERIMENTALAfter the initial 14-week double-blind treatment period, all participants immediately transitioned to open-label setmelanotide once daily SC injection for 38 weeks (Period 2) and then continued to receive setmelanotide in the 14-week open-label treatment period (Period 3).
SetmelanotideEXPERIMENTALParticipants received titrated doses of setmelanotide once daily, by SC injection during titration period for 2 - 12 weeks. Thereafter, participants continued setmelanotide at their specific therapeutic dose for an additional 10 weeks during the open label treatment period. Participants who achieved at least a 5 kg weight loss (or at least 5% weight loss if baseline body weight was \<100 kg) at the end of the open label treatment period, continued into the 8-week double-blind withdrawal period and received 4 weeks setmelanotide and 4 weeks placebo. Following the withdrawal period, participants entered open label treatment period and received setmelanotide to complete approximately 52 weeks (\~1 year) of treatment at a therapeutic dose.
Stage 1: Setmelanotide (Open-Label)EXPERIMENTALParticipants received once daily SC injection of setmelanotide from Day 1 to Week 16 in an open-label treatment stage (Stage 1). Participants ≥12 years of age started on setmelanotide 2.0 milligrams (mg) once daily for approximately 2 weeks, then increased to 3.0 mg once daily. Participants \<12 years of age started on setmelanotide 1.0 mg once daily for approximately 1 week, then increased to 2.0 mg once daily for approximately 1 week, then increased to 3.0 mg once daily.
Stage 2: Setmelanotide (Double-Blind)EXPERIMENTALParticipants from Stage 1 who were eligible for Stage 2 received once daily SC injection of setmelanotide 3.0 mg from Week 16 to Week 40 in a double-blind treatment Stage (Stage 2).
Stage 2: Placebo (Double-Blind)PLACEBO_COMPARATORParticipants from Stage 1 who were eligible for Stage 2 received once daily SC injection of matching placebo 3.0 mg from Week 16 to Week 40 in a double-blind treatment Stage (Stage 2).
Setmelanotide daily subcutaneous injectionEXPERIMENTALUp to 18 weeks setmelanotide treatment.
16p11.2 CohortEXPERIMENTALParticipants with chromosomal rearrangement of the p11.2 region of chromosome 16 (16p11.2) locus causing obesity received setmelanotide once daily (QD) via subcutaneous (SC) injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
AS CohortEXPERIMENTALParticipants with Alström syndrome (AS) received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
BBS CohortEXPERIMENTALParticipants with Bardet-Biedl syndrome (BBS) received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
MC4R CohortEXPERIMENTALParticipants with melanocortin-4 receptor (MC4R) deficiency obesity received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
POMC/PCSK1/LEPR Heterozygous CohortEXPERIMENTALParticipants with pro-opiomelanocortin (POMC)/proprotein convertase subtilisin/kexin type 1 (PCSK1)/leptin receptor (LEPR) heterozygous mutations received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
POMC/PCSK1/LEPR Composite Heterozygous CohortEXPERIMENTALParticipants with POMC/PCSK1/LEPR composite heterozygous mutations received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
POMC/PCSK1/LEPR Compound Heterozygous CohortEXPERIMENTALParticipants with POMC/PCSK1/LEPR compound heterozygous mutations received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
SH2B1 CohortEXPERIMENTALParticipants with steroid receptor coactivator (SRC) homology 2B adapter protein 1 (SH2B1) haploinsufficiency received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
SMS CohortEXPERIMENTALParticipants with Smith-Magenis Syndrome (SMS) received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
SRC1 CohortEXPERIMENTALParticipants with steroid receptor coactivator 1 (SRC1) mutations received setmelanotide QD via SC injection for 16 weeks. All participants initiated treatment with setmelanotide (starting dose being age dependent) and the dose was escalated up to a maximum dose of 3.0 mg QD. Participants either continued setmelanotide treatment by enrolling in an extension study (RM-493-022; NCT03651765) immediately following the last dose in this study or if the extension study was not open at the current clinic site, participants continued treatment in the current study for up to 1 year, resulting in treatment duration of up to 16 months.
Setmelanotide 0.5 mgEXPERIMENTALParticipants received setmelanotide 0.5 milligrams (mg) once daily as a subcutaneous injection from Day 15 to Day 41 (4-week, double-blind randomized treatment period) and Day 42 to Day 55 (2-week, randomized withdrawal period).
Setmelanotide 1.5 mgEXPERIMENTALParticipants received setmelanotide 1.5 once daily as a subcutaneous injection from Day 15 to Day 41 (4-week, double-blind randomized treatment period), Day 42 to Day 55 (2-week, randomized withdrawal period), and Day 56 to Day 69 (optional 2-week, open-label extension period).
Setmelanotide 2.5 mgEXPERIMENTALParticipants received setmelanotide 2.5 once daily as a subcutaneous injection from Day 15 to Day 41 (4-week, double-blind randomized treatment period), Day 42 to Day 55 (2-week, randomized withdrawal period), and Day 56 to Day 69 (optional 2-week, open-label extension period).
Mild impairmentEXPERIMENTAL -
Moderate impairmentEXPERIMENTAL -
Severe impairmentEXPERIMENTAL -
Normal (control)EXPERIMENTAL -
Setmelanotide Once DailyACTIVE_COMPARATOROnce daily in the morning, equivalent placebo in evening.
Setmelanotide Split DoseACTIVE_COMPARATORSplit dose, one half in the morning and one half in the evening.
Interventions
NameTypeDescription
SetmelanotideDRUGSolution for daily subcutaneous injection
PlaceboDRUGPlacebo matched to setmelanotide for daily subcutaneous injection
Setmelanotide 2 mgDRUGAdministered as SC injection
Setmelanotide 2.5 mgDRUGAdministered as SC injection
Setmelanotide 3 mgDRUGAdministered as SC injection
Setmelanotide 20 mgDRUGAdministered as SC injection
Setmelanotide 25 mgDRUGAdministered as SC injection
Setmelanotide 30 mgDRUGAdministered as SC injection
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Eligibility Criteria
Age Range4 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites11

Key Inclusion Criteria: 1. Diagnosis of multiple pituitary hormone deficiency (MPHD), or septo-optic dysplasia (SOD), or optic nerve hypoplasia (ONH), or Childhood-onset combined pituitary hormone deficiency (CPHD), or Pituitary Stalk Interruption Syndrome (PSIS) with at least one pituitary deficie...

Countries:United StatesUnited KingdomCanadaGermanyJapanNetherlandsAustraliaSpainPuerto RicoFranceGreeceIsraelReunionBelgium
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Recent Changes (Last 90 Days)
HIGHJul 15, 2026NCT06596135Status: ENROLLING_BY_INVITATION → COMPLETED
HIGHJul 15, 2026NCT06596135Status: ENROLLING_BY_INVITATION → COMPLETED
LOWMay 29, 2026NCT05774756Enrollment: 120 → 143
LOWMay 29, 2026NCT05774756Enrollment: 120 → 143
LOWMay 26, 2026NCT06760546primaryCompletionDate: changed
LOWMay 26, 2026NCT06596135primaryCompletionDate: changed
LOWMay 26, 2026NCT06772597primaryCompletionDate: changed
LOWMay 26, 2026NCT05093634primaryCompletionDate: changed
LOWMay 26, 2026NCT05774756primaryCompletionDate: changed
LOWMay 24, 2026NCT06760546studyFirstPostDate: changed
LOWMay 24, 2026NCT06596135studyFirstPostDate: changed
LOWMay 24, 2026NCT05093634studyFirstPostDate: changed
LOWMay 24, 2026NCT06772597studyFirstPostDate: changed
LOWMay 24, 2026NCT05774756studyFirstPostDate: changed