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Recombinant human C1 inhibitor

Phase 3

Hereditary Angioedema | Monoclonal antibody | Immunology |Pharming Group N.V.|Last Updated: Jun 26, 2018

Success Probability

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Trial Design

RandomizedDouble-BlindPLACEBO_CONTROLLEDDMC
Total Trials3
Total Enrollment184

FDA Designations

No designations recorded

Clinical trial landscape

Recombinant human C1 inhibitor · 4 trials · 3 indications

Phase 3 1Phase 2 3
NCT00262301Recombinant Human C1 Inhibitor for the Treatment of Acute Attacks in Patients With Hereditary AngioedemaHereditary Angioedema
COMPLETED75 Analytics
PHASE3COMPLETED
Recombinant Human C1 Inhibitor for the Treatment of Acute Attacks in Patients With Hereditary Angioedema
Hereditary AngioedemaUnlock trial analytics

Study Endpoints

Primary Endpoints

Time to Beginning of Relief of Symptoms
up to 48 hours after study drug administration

The time to beginning of relief of symptoms has been assessed by using a patient-reported visual analogue scale ("VAS") ranging from 0 mm (no symptoms at all) to 100 mm (extremely disabling). Time to beginning of relief of symptoms at the location that showed first "VAS" score decrease of at least 20 mm from baseline score (t= 0 min) to the next assessment time-point). Assessment time-points were taken on pre-scheduled time-points after drug administration: baseline (0 minutes), 15 minutes, 30 minutes, 1 hour, 2 hours, 4 hours, 8 hours, 12 hours, 16 hours, 24 hours, 48 hours. Time to beginning of relief has been calculated as median time, by using the exact time-points on which each assessment was performed.

Number of HAE Attacks
28 days

Average number of HAE attacks normalized to a 28 day period

HAE Attacks/Week
8 weeks

Prior to the treatment period, patients enrolled in the study, were asked about the amount of "HAE" attacks in the past 2 years, (calculated to attacks/week), this number is defined as "Historical". During the treatment period, patients received a dose of 50 IU/kg of "rhC1INH" administered by slow "IV" injection over 4 to 5 minutes, once a week during an eight week period. The amount of attacks during this period is defined as "Prophylaxis" (calculated to attacks/week).

Secondary Endpoints

Time to Minimal Symptoms
up to 48 hours after study drug administration
Number of Participants With Adverse Events
20 weeks
Percentage of Participants Achieving at Least 50% Reduction in Number of Attacks
28 days
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Study Design & Arms

AllocationRANDOMIZED
MaskingQUADRUPLE
ModelPARALLEL
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
100 IU/kg "rhC1INH"EXPERIMENTAL100 IU/kg recombinant human C1 inhibitor
SalinePLACEBO_COMPARATORSaline solution
rhC1INH twice weeklyEXPERIMENTALrhC1INH administered twice weekly
rhC1INH once weeklyEXPERIMENTALrhC1INH administered once weekly
Placebo (Saline) twice weeklyPLACEBO_COMPARATORPlacebo (Saline) administered twice weekly
Recombinant Human C1 InhibitorOTHERWeekly administration of 50 IU/kg Recombinant Human C1 Inhibitor
100 IU/kg rhC1INHEXPERIMENTAL100 IU/kg Recombinant human C1 inhibitor
50 IU/kg rhC1INHEXPERIMENTAL50 IU/kg Recombinant human C1 inhibitor

Interventions

NameTypeDescription
recombinant human C1 inhibitorDRUGIV
PlaceboDRUGIV
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Eligibility Criteria

Age Range16 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites2

Inclusion Criteria: * Clear clinical and laboratory diagnosis of HAE * Baseline plasma level of functional C1INH of less than 50% of normal * Evidence for exacerbation or development of a severe abdominal, oro-facial/ pharyngeal/ laryngeal, genito-urinary and/or peripheral HAE attack Exclusion Cri...

Countries:NetherlandsRomaniaUnited StatesCanadaCzechiaItalyNorth MacedoniaSerbia
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Frequently asked questions about Recombinant human C1 inhibitor

What is Recombinant Human C1 Inhibitor used for?

Recombinant Human C1 Inhibitor is used for treating acute attacks in patients with hereditary angioedema, a genetic disorder. It has also been studied for prophylaxis of hereditary angioedema attacks. The drug is being developed by Pharming Group N.V. and is currently in Phase 2 clinical development.

How does Recombinant Human C1 Inhibitor work?

Recombinant Human C1 Inhibitor works by replacing the deficient or dysfunctional C1 inhibitor protein in patients with hereditary angioedema. This protein normally regulates the complement system and prevents excessive activation that leads to swelling. By restoring C1 inhibitor activity, the drug helps control acute attacks and may prevent future episodes.

Who makes Recombinant Human C1 Inhibitor?

Recombinant Human C1 Inhibitor is developed by Pharming Group N.V., a biopharmaceutical company traded under the ticker PHAR. The company is focused on developing innovative therapies for rare diseases, with this drug being a key asset in its pipeline for hereditary angioedema.

What phase is Recombinant Human C1 Inhibitor in?

Recombinant Human C1 Inhibitor is currently in Phase 2 clinical development. It has completed three clinical trials, including a Phase 3 study, but is not yet approved by regulatory authorities. The drug remains investigational and is being evaluated for safety and efficacy in treating hereditary angioedema.

What clinical trials has Recombinant Human C1 Inhibitor been in?

Recombinant Human C1 Inhibitor has been studied in three completed trials. NCT00225147 was a Phase 2 trial treating acute attacks in 77 patients. NCT00262301 was a Phase 3 trial with 75 patients. NCT00851409 assessed safety and immunogenicity in 25 patients, and NCT02247739 was a Phase 2 prophylaxis study with 32 patients.

Is Recombinant Human C1 Inhibitor the same as Ruconest?

Recombinant Human C1 Inhibitor is also known as Ruconest, a brand name for the drug. It is a recombinant form of the human C1 esterase inhibitor protein. This medication is used to treat acute attacks of hereditary angioedema in patients, and it is being developed by Pharming Group N.V.