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Recombinant human C1 inhibitor

Phase 3

Hereditary Angioedema | Monoclonal antibody | Immunology |Pharming Group N.V.|Last Updated: Jun 26, 2018

Success Probability

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Trial Design

RandomizedDouble-BlindPLACEBO_CONTROLLEDDMC
Total Trials3
Total Enrollment184

FDA Designations

No designations recorded

Clinical trial landscape

Recombinant human C1 inhibitor · 4 trials · 3 indications

Phase 3 1Phase 2 3
NCT00262301Recombinant Human C1 Inhibitor for the Treatment of Acute Attacks in Patients With Hereditary AngioedemaHereditary Angioedema
COMPLETED75 Analytics
PHASE3COMPLETED
Recombinant Human C1 Inhibitor for the Treatment of Acute Attacks in Patients With Hereditary Angioedema
Hereditary AngioedemaUnlock trial analytics

Study Endpoints

Primary Endpoints

Time to Beginning of Relief of Symptoms
up to 48 hours after study drug administration

The time to beginning of relief of symptoms has been assessed by using a patient-reported visual analogue scale ("VAS") ranging from 0 mm (no symptoms at all) to 100 mm (extremely disabling). Time to beginning of relief of symptoms at the location that showed first "VAS" score decrease of at least 20 mm from baseline score (t= 0 min) to the next assessment time-point). Assessment time-points were taken on pre-scheduled time-points after drug administration: baseline (0 minutes), 15 minutes, 30 minutes, 1 hour, 2 hours, 4 hours, 8 hours, 12 hours, 16 hours, 24 hours, 48 hours. Time to beginning of relief has been calculated as median time, by using the exact time-points on which each assessment was performed.

Number of HAE Attacks
28 days

Average number of HAE attacks normalized to a 28 day period

HAE Attacks/Week
8 weeks

Prior to the treatment period, patients enrolled in the study, were asked about the amount of "HAE" attacks in the past 2 years, (calculated to attacks/week), this number is defined as "Historical". During the treatment period, patients received a dose of 50 IU/kg of "rhC1INH" administered by slow "IV" injection over 4 to 5 minutes, once a week during an eight week period. The amount of attacks during this period is defined as "Prophylaxis" (calculated to attacks/week).

Secondary Endpoints

Time to Minimal Symptoms
up to 48 hours after study drug administration
Number of Participants With Adverse Events
20 weeks
Percentage of Participants Achieving at Least 50% Reduction in Number of Attacks
28 days
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Study Design & Arms

AllocationRANDOMIZED
MaskingQUADRUPLE
ModelPARALLEL
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
100 IU/kg "rhC1INH"EXPERIMENTAL100 IU/kg recombinant human C1 inhibitor
SalinePLACEBO_COMPARATORSaline solution
rhC1INH twice weeklyEXPERIMENTALrhC1INH administered twice weekly
rhC1INH once weeklyEXPERIMENTALrhC1INH administered once weekly
Placebo (Saline) twice weeklyPLACEBO_COMPARATORPlacebo (Saline) administered twice weekly
Recombinant Human C1 InhibitorOTHERWeekly administration of 50 IU/kg Recombinant Human C1 Inhibitor
100 IU/kg rhC1INHEXPERIMENTAL100 IU/kg Recombinant human C1 inhibitor
50 IU/kg rhC1INHEXPERIMENTAL50 IU/kg Recombinant human C1 inhibitor

Interventions

NameTypeDescription
recombinant human C1 inhibitorDRUGIV
PlaceboDRUGIV
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Eligibility Criteria

Age Range16 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites2

Inclusion Criteria: * Clear clinical and laboratory diagnosis of HAE * Baseline plasma level of functional C1INH of less than 50% of normal * Evidence for exacerbation or development of a severe abdominal, oro-facial/ pharyngeal/ laryngeal, genito-urinary and/or peripheral HAE attack Exclusion Cri...

Countries:NetherlandsRomaniaUnited StatesCanadaCzechiaItalyNorth MacedoniaSerbia
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Frequently asked questions about Recombinant human C1 inhibitor

What is Recombinant Human C1 Inhibitor used for?

Recombinant Human C1 Inhibitor is used for the treatment of acute attacks in patients with Hereditary Angioedema, a rare genetic disorder. It is also being studied for prophylaxis of Hereditary Angioedema attacks. The drug is currently in clinical development and is not yet approved by regulatory authorities.

Who makes Recombinant Human C1 Inhibitor?

Recombinant Human C1 Inhibitor is being developed by Pharming Group N.V., a biopharmaceutical company listed on the stock exchange under the ticker symbol PHAR. The company is conducting clinical trials to evaluate the drug's safety and efficacy in patients with Hereditary Angioedema.

What phase is Recombinant Human C1 Inhibitor in?

Recombinant Human C1 Inhibitor is in Phase 2 and Phase 3 clinical trials. The drug is investigational and has not been approved by the FDA or other regulatory agencies. It is being studied for the treatment of acute attacks and prophylaxis in patients with Hereditary Angioedema.

What clinical trials is Recombinant Human C1 Inhibitor in?

Recombinant Human C1 Inhibitor has been studied in several completed clinical trials, including NCT00225147 and NCT00262301 for acute attacks in Hereditary Angioedema, NCT00851409 for safety and immunogenicity, and NCT02247739 for prophylaxis. These trials enrolled a total of 184 patients across multiple countries.

Is Recombinant Human C1 Inhibitor the same as rhC1INH?

Yes, Recombinant Human C1 Inhibitor is also known as rhC1INH, as referenced in clinical trial titles. This abbreviation is used in studies such as NCT00851409, which examined the safety and immunogenicity of repeated rhC1INH administration in patients with Hereditary Angioedema.