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DCCR

Phase 3

Prader-Willi Syndrome | Small molecule | Rare Disease |Soleno Therapeutics, Inc.|Last Updated: Apr 2, 2025

Success Probability

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Market & Valuation

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Trial Design

RandomizedDouble-BlindPLACEBO_CONTROLLEDDMC
Total Trials3
Total Enrollment325

FDA Designations

BREAKTHROUGH_THERAPYORPHAN_DRUGFAST_TRACKPRIORITY_REVIEW

Clinical trial landscape

DCCR · 3 trials · 1 indication

Phase 3 3
NCT05701774Open-Label Extension Study of DCCR in Patients With Prader-Willi SyndromePrader-Willi Syndrome
ACTIVE NOT_RECRUITING83 Analytics
NCT03714373Open-Label Extension Study of DCCR in PWS Followed by Double-Blind, Placebo-Controlled, Randomized Withdrawal PeriodPrader-Willi Syndrome
COMPLETED115 Analytics
NCT03440814A Study of Diazoxide Choline in Patients With Prader-Willi SyndromePrader-Willi Syndrome
COMPLETED127 Analytics
PHASE3ACTIVE NOT_RECRUITING
Open-Label Extension Study of DCCR in Patients With Prader-Willi Syndrome
Prader-Willi SyndromeUnlock trial analytics
PHASE3COMPLETED
Open-Label Extension Study of DCCR in PWS Followed by Double-Blind, Placebo-Controlled, Randomized Withdrawal Period
Prader-Willi SyndromeUnlock trial analytics
PHASE3COMPLETED
A Study of Diazoxide Choline in Patients With Prader-Willi Syndrome
Prader-Willi SyndromeUnlock trial analytics

Study Endpoints

Primary Endpoints

Safety of DCCR (adverse events. Safety analyses will be conducted in all subjects who receive at least one dose of DCCR in the C614 study. ( Adverse events)
Baseline to End of Study or until resolution of certain adverse events

Assess the safety of DCCR by evaluating the incidence and severity of adverse events. Safety analyses will be conducted in all subjects who receive at least one dose of DCCR in the C614 study. Adverse events will be described by type and level of severity.

Assess the safety of DCCR by evaluating the incidence and severity of adverse events reported
Baseline to end of OLE (up to 4 years)

Safety analyses will be conducted in all participants who receive at least one dose of DCCR. Adverse events will be described by type and level of severity.

Change from RW Period Baseline in HQ-CT Total Score
RW Period Baseline to Week 16

Hyperphagia-related behaviors will be assessed by the hyperphagia questionnaire for clinical trials (HQ-CT), an instrument designed to measure symptoms of food related preoccupations and behaviors. The HQ-CT consists of nine items with responses ranging from 0-4 (best to worst). Scores from 9 items will be summed for a possible total score range of 0-36.

Hyperphagia Questionnaire (HQ-CT) Change From Baseline at Visit 7 (Week 13)
Baseline to Visit 7 (Week 13)

Hyperphagia-related behaviors were assessed by the validated hyperphagia questionnaire for clinical trials (HQ-CT), an instrument designed to measure symptoms of food related preoccupations and behaviors that was completed by the caregiver. The HQ-CT consists of nine items with responses ranging from 0-4 units each (possible total score range: 0-36). The HQ-CT was assessed at Screening, Baseline (Visit 2), and approximately every 4 weeks post-dose at Week 4, Week 8, and Week 13. A decrease in score from baseline represented improvement.

Secondary Endpoints

Change from Baseline in HQ-CT Total Score
Baseline to end of OLE (up to 4 years)
Change in Body Fat Mass
Baseline to end of OLE (up to 4 years)
Clinical Global Impression of Improvement (CGI-I)
RW Period Week 16
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Study Design & Arms

AllocationNA
MaskingNONE
ModelSINGLE_GROUP
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
DCCREXPERIMENTAL75 - 525 mg DCCR
OLE DCCREXPERIMENTAL75 - 525 mg DCCR
RW DCCREXPERIMENTAL75 - 525 mg DCCR
RW PlaceboPLACEBO_COMPARATOR75 - 525 mg Placebo for DCCR
PlaceboPLACEBO_COMPARATOR75 - 450 mg placebo for DCCR

Interventions

NameTypeDescription
DCCRDRUGOnce daily oral administration
Placebo for DCCRDRUGOnce daily oral administration of double-blind (placebo for DCCR) tablet(s) during the RW Period
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Eligibility Criteria

Age Range4 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites22

Inclusion Criteria: 1. Provide voluntary, written informed consent (parent(s) / legal guardian(s) of patient); provide voluntary, written assent (subjects, as appropriate) 2. Participant must: 1. Have participated in and completed the Study C602 Randomized Withdrawal (RW) Period; 2. Have par...

Countries:United StatesUnited Kingdom
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Frequently asked questions about DCCR

What is DCCR used for in Prader-Willi Syndrome?

DCCR is an investigational small molecule being developed for the treatment of Prader-Willi Syndrome, a rare genetic disorder. It is currently in Phase 3 clinical development and has not been approved by the FDA. The drug has received Breakthrough Therapy, Orphan Drug, Fast Track, and Priority Review designations from the FDA.

What does DCCR target?

DCCR is a small molecule that targets the hyperphagia and other symptoms associated with Prader-Willi Syndrome. Its mechanism of action involves modulating pathways related to appetite regulation and metabolic function, though the specific molecular target is not disclosed in the available information.

Who makes DCCR?

DCCR is being developed by Soleno Therapeutics, Inc., a biopharmaceutical company traded on the NASDAQ under the ticker symbol SLNO. The company is conducting Phase 3 clinical trials to evaluate the drug's safety and efficacy in patients with Prader-Willi Syndrome.

What phase is DCCR in?

DCCR is currently in Phase 3 clinical development. It has completed two Phase 3 trials and has one active Phase 3 trial that is not yet recruiting. The drug is investigational and has not received FDA approval, though it has been granted several expedited development designations.

What clinical trials is DCCR in?

DCCR has been studied in three Phase 3 clinical trials. The completed trials are NCT03440814, a placebo-controlled study with 127 patients, and NCT03714373, an open-label extension with a randomized withdrawal period involving 115 patients. The active trial is NCT05701774, an open-label extension with 83 patients.

Is DCCR the same as diazoxide choline?

Yes, DCCR is also known as diazoxide choline. Clinical trials for DCCR in Prader-Willi Syndrome are titled as studies of diazoxide choline, and the drug is being evaluated under this name in Phase 3 trials conducted in the United States and the United Kingdom.