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DCCR

Phase 3

Prader-Willi Syndrome | Small molecule | Rare Disease |Soleno Therapeutics, Inc.|Last Updated: Apr 2, 2025

Success Probability
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Market & Valuation
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Trial Design
RandomizedDouble-BlindPLACEBO_CONTROLLEDDMC
Total Trials3
Total Enrollment325
FDA Designations
BREAKTHROUGH_THERAPYORPHAN_DRUGFAST_TRACKPRIORITY_REVIEW
Clinical trial landscape

DCCR · 3 trials · 1 indication

Phase 3 3
NCT05701774Open-Label Extension Study of DCCR in Patients With Prader-Willi SyndromePrader-Willi Syndrome
ACTIVE NOT_RECRUITING83 Analytics
NCT03714373Open-Label Extension Study of DCCR in PWS Followed by Double-Blind, Placebo-Controlled, Randomized Withdrawal PeriodPrader-Willi Syndrome
COMPLETED115 Analytics
NCT03440814A Study of Diazoxide Choline in Patients With Prader-Willi SyndromePrader-Willi Syndrome
COMPLETED127 Analytics
PHASE3ACTIVE NOT_RECRUITING
Open-Label Extension Study of DCCR in Patients With Prader-Willi Syndrome
Prader-Willi SyndromeUnlock trial analytics
PHASE3COMPLETED
Open-Label Extension Study of DCCR in PWS Followed by Double-Blind, Placebo-Controlled, Randomized Withdrawal Period
Prader-Willi SyndromeUnlock trial analytics
PHASE3COMPLETED
A Study of Diazoxide Choline in Patients With Prader-Willi Syndrome
Prader-Willi SyndromeUnlock trial analytics
Study Endpoints
Primary Endpoints
Safety of DCCR (adverse events. Safety analyses will be conducted in all subjects who receive at least one dose of DCCR in the C614 study. ( Adverse events)
Baseline to End of Study or until resolution of certain adverse events

Assess the safety of DCCR by evaluating the incidence and severity of adverse events. Safety analyses will be conducted in all subjects who receive at least one dose of DCCR in the C614 study. Adverse events will be described by type and level of severity.

Assess the safety of DCCR by evaluating the incidence and severity of adverse events reported
Baseline to end of OLE (up to 4 years)

Safety analyses will be conducted in all participants who receive at least one dose of DCCR. Adverse events will be described by type and level of severity.

Change from RW Period Baseline in HQ-CT Total Score
RW Period Baseline to Week 16

Hyperphagia-related behaviors will be assessed by the hyperphagia questionnaire for clinical trials (HQ-CT), an instrument designed to measure symptoms of food related preoccupations and behaviors. The HQ-CT consists of nine items with responses ranging from 0-4 (best to worst). Scores from 9 items will be summed for a possible total score range of 0-36.

Hyperphagia Questionnaire (HQ-CT) Change From Baseline at Visit 7 (Week 13)
Baseline to Visit 7 (Week 13)

Hyperphagia-related behaviors were assessed by the validated hyperphagia questionnaire for clinical trials (HQ-CT), an instrument designed to measure symptoms of food related preoccupations and behaviors that was completed by the caregiver. The HQ-CT consists of nine items with responses ranging from 0-4 units each (possible total score range: 0-36). The HQ-CT was assessed at Screening, Baseline (Visit 2), and approximately every 4 weeks post-dose at Week 4, Week 8, and Week 13. A decrease in score from baseline represented improvement.

Secondary Endpoints
Change from Baseline in HQ-CT Total Score
Baseline to end of OLE (up to 4 years)
Change in Body Fat Mass
Baseline to end of OLE (up to 4 years)
Clinical Global Impression of Improvement (CGI-I)
RW Period Week 16
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Study Design & Arms
AllocationNA
MaskingNONE
ModelSINGLE_GROUP
PurposeTREATMENT
Treatment Arms
ArmTypeDescription
DCCREXPERIMENTAL75 - 525 mg DCCR
OLE DCCREXPERIMENTAL75 - 525 mg DCCR
RW DCCREXPERIMENTAL75 - 525 mg DCCR
RW PlaceboPLACEBO_COMPARATOR75 - 525 mg Placebo for DCCR
PlaceboPLACEBO_COMPARATOR75 - 450 mg placebo for DCCR
Interventions
NameTypeDescription
DCCRDRUGOnce daily oral administration
Placebo for DCCRDRUGOnce daily oral administration of double-blind (placebo for DCCR) tablet(s) during the RW Period
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Eligibility Criteria
Age Range4 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites22

Inclusion Criteria: 1. Provide voluntary, written informed consent (parent(s) / legal guardian(s) of patient); provide voluntary, written assent (subjects, as appropriate) 2. Participant must: 1. Have participated in and completed the Study C602 Randomized Withdrawal (RW) Period; 2. Have par...

Countries:United StatesUnited Kingdom
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Recent Changes (Last 90 Days)
LOWMay 26, 2026NCT05701774primaryCompletionDate: changed
LOWMay 24, 2026NCT05701774studyFirstPostDate: changed