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Voretigene neparvovec

Phase 3

Inherited Retinal Dystrophy Due to RPE65 Mutations | Monoclonal antibody | Rare Disease |Roche Holding AG|Last Updated: Apr 29, 2025

Target and mechanism

ModalityMonoclonal antibody

Also known as voretigene neparvovec-rzyl, AAV2-hRPE65v2,voretigene neparvovec-rzyl

Success Probability

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Market & Valuation

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Trial Design

RandomizedNO_TREATMENT_CONTROLLEDDMC
Total Trials1
Total Enrollment31

FDA Designations

No designations recorded

Clinical trial landscape

Voretigene neparvovec · 3 trials · 2 indications

Phase 3 1Phase 1 2
NCT00999609Safety and Efficacy Study in Subjects With Leber Congenital AmaurosisInherited Retinal Dystrophy Due to RPE65 Mutations
ACTIVE NOT_RECRUITING31 Analytics
PHASE3ACTIVE NOT_RECRUITING
Safety and Efficacy Study in Subjects With Leber Congenital Amaurosis
Inherited Retinal Dystrophy Due to RPE65 MutationsUnlock trial analytics

Study Endpoints

Primary Endpoints

Multi-luminance Mobility Testing (MLMT), Bilateral
One year (change from baseline)

The MLMT measures changes in functional vision, as assessed by the ability to navigate a course accurately and at a reasonable pace at different levels of environmental illumination. MLMT was assessed using both eyes at 1 or more of 7 levels of illumination, ranging from 400 lux (a brightly lit office) to 1 lux (a moonless summer night). Each light level was assigned a score code ranging from 0 to 6. A higher score indicated that a subject was able to pass the MLMT at a lower light level. A score of -1 was assigned to those who could not pass MLMT at 400 lux. The MLMT of each subject was videotaped and assessed by independent graders. The MLMT score was determined by the lowest light level at which the subject was able to pass the MLMT. The MLMT score change was defined as the difference between the score at Baseline and the score at Year 1. A positive MLMT score change from Baseline to Year 1 visit indicated that the subject was able to complete the MLMT at a lower light level.

Adverse events as a measure of safety and tolerability
15 years

The primary outcome measures are safety and tolerability. Secondary outcome measure(s) include changes in visual function as measured by subjective, psychophysical tests and by objective, physiologic tests.

The primary outcome measures are safety and tolerability. Secondary outcome measure(s) include changes in visual function as measured by subjective, psychophysical tests and by objective, physiologic tests.
Visual function will be measured at designated intervals from baseline visits through 5 years as stated in the protocol.

Secondary Endpoints

Full-field Light Sensitivity Threshold (FST) Testing: White Light
One year (change from baseline)
Multi-luminance Mobility Testing (Monocular)
One year (change from baseline)
Visual Acuity
One year (change from baseline)
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Study Design & Arms

AllocationRANDOMIZED
MaskingNONE
ModelPARALLEL
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
AAV2-hRPE65v2,voretigene neparvovec-rzylEXPERIMENTALvoretigene neparvovec rzyl, 1.5 E11 vector genomes, per eye, administered by subretinal injection in a volume of 0.3mL, 6-18 days apart
ControlNO_INTERVENTIONNo intervention
voretigene neparvovec-rzyl (AAV2-hRPE65v2)EXPERIMENTALAdministration of study agent (AAV2-hRPE65v2) to the previously, uninjected contralateral eye:
dose cohort 1EXPERIMENTAL1.5E10 vector genomes voretigene neparvovec-rzyl in 150 microliters administered subretinally
dose cohort 2EXPERIMENTAL4.8E10 vector genomes voretigene neparvovec-rzyl in 150 microliters administered subretinally
dose cohort 3EXPERIMENTAL1.5E11 vector genomes voretigene neparvovec-rzyl in 300 microliters administered subretinally

Interventions

NameTypeDescription
AAV2-hRPE65v2,voretigene neparvovec-rzylBIOLOGICALSubretinal administration of gene therapy vector AAV2-hRPE65v2 (1.5E11 vector genomes per eye) to both eyes via surgical procedures on separate days.
voretigene neparvovec-rzylBIOLOGICALOne time, subretinal administration of 1.5E11 vg AAV2-hRPE65v2 vector in 300 microliters to the contralateral, previously uninjected eye.
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Eligibility Criteria

Age Range3 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites2

Inclusion Criteria: * Willingness to adhere to protocol and long-term follow-up as evidenced by written informed consent or parental permission and subject assent (where applicable). * Diagnosis of LCA due to RPE65 mutations; molecular diagnosis is to be performed, or confirmed, by a CLIA-approved ...

Countries:United States
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