Recent Updates
Recently added Catalysts

ALN-SOD

Phase 1

Amyotrophic Lateral Sclerosis (ALS) | Small molecule | Rare Disease |Regeneron Pharmaceuticals, Inc.|Last Updated: Jul 22, 2026

Success Probability

Subscribe to view

Market & Valuation

Subscribe to view

Trial Design

RandomizedCONTROLLED
Total Trials1
Total Enrollment54

FDA Designations

No designations recorded

Clinical trial landscape

ALN-SOD · 1 trial · 2 indications

Phase 1 1
NCT06351592First in Human (FIH) Study of ALN-SOD in Adult Participants With Amyotrophic Lateral Sclerosis Associated With Mutation in the SOD1 Gene (SOD1-ALS)Amyotrophic Lateral Sclerosis (ALS)
RECRUITING54 Analytics
PHASE1RECRUITING
First in Human (FIH) Study of ALN-SOD in Adult Participants With Amyotrophic Lateral Sclerosis Associated With Mutation in the SOD1 Gene (SOD1-ALS)
Amyotrophic Lateral Sclerosis (ALS)Unlock trial analytics

Study Endpoints

Primary Endpoints

Incidence of Treatment-Emergent Adverse Event (TEAEs) in participants treated with ALN-SOD
At week 4 and through week 228
Severity of TEAEs in participants treated with ALN-SOD
At week 4 and through week 228

Secondary Endpoints

Concentration of Neurofilament Light chain (NfL) in plasma over time
Up to approximately week 228
Change in concentration of NfL in plasma over time
Up to approximately week 228
Concentration of SOD1 protein in Cerebrospinal Fluid (CSF) over time
Up to approximately week 228
Unlock Study Endpoints

Study Design & Arms

AllocationRANDOMIZED
MaskingNONE
ModelSEQUENTIAL
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
Cohort 1 - Dose Level 1EXPERIMENTALPlacebo during 4-Week double-blind treatment period
Cohort 2 - Dose Level 2EXPERIMENTALPlacebo during 4-Week double-blind treatment period
Cohort 3 - Dose Level 3EXPERIMENTALPlacebo during 4-Week double-blind treatment period
Cohort 4 - Dose Level 4EXPERIMENTALPlacebo during 4-Week double-blind treatment period
Cohort 5 (Optional) - ≤ Dose Level 5EXPERIMENTALPlacebo during 4-Week double-blind treatment period
Selected Dose Expansion Cohort(s)EXPERIMENTALOpen Label Treatment (OLT) at selected dose levels. EU Participants can only be included in the Dose Expansion portion of study (Phase 2), not in Dose Escalation (Phase 1)

Interventions

NameTypeDescription
ALN-SODDRUGAdministered per the protocol
DiluentOTHERAdministered per the protocol
Placebo (PB)DRUGAdministered per the protocol
Unlock Study Design Details

Eligibility Criteria

Age Range18 Years to N/A
SexALL
Healthy VolunteersNo
Study Sites20

Key Inclusion Criteria: 1. Weakness attributable to ALS and a SOD1 variant that has been previously described as associated with ALS or is considered likely to cause ALS, as defined in the protocol 2. Slow Vital Capacity (SVC) ≥50% predicted value based on age, gender and height, measured in uprigh...

Countries:AustraliaBelgiumCanadaGermanyJapanPolandSouth KoreaSwedenTaiwan
Unlock Eligibility Criteria

Recent Changes (Last 90 Days)

LOWJul 22, 2026NCT06351592lastUpdatePostDate: changed
LOWJul 22, 2026NCT06351592lastUpdatePostDate: changed
MEDIUMJun 22, 2026NCT06351592Enrollment: 42 → 54
MEDIUMJun 22, 2026NCT06351592Enrollment: 42 → 54
LOWMay 26, 2026NCT06351592primaryCompletionDate: changed
LOWMay 24, 2026NCT06351592studyFirstPostDate: changed

Frequently asked questions about ALN-SOD

What is ALN-SOD used for?

ALN-SOD is an investigational small molecule being developed for the treatment of amyotrophic lateral sclerosis (ALS) associated with a mutation in the SOD1 gene. It is currently in Phase 1 clinical development and has not been approved by regulatory authorities.

Who makes ALN-SOD?

ALN-SOD is being developed by Regeneron Pharmaceuticals, Inc. (NASDAQ: REGN). The company is conducting a Phase 1 clinical trial to evaluate the drug in adult participants with SOD1-ALS.

What phase is ALN-SOD in?

ALN-SOD is in Phase 1 clinical development. It is an investigational drug and has not been approved for any use. A first-in-human study is currently recruiting participants to evaluate its safety and tolerability.

What clinical trials is ALN-SOD in?

ALN-SOD is being studied in a Phase 1 first-in-human trial with the identifier NCT06351592. The trial is recruiting 54 adult participants with ALS associated with a SOD1 gene mutation across multiple countries, including the United States, Australia, and several European and Asian nations.

Is ALN-SOD the same as any other drug?

ALN-SOD is a distinct investigational drug candidate. No alternative names have been reported for this asset. It is being studied specifically for SOD1-mutation-associated ALS and is not known to be identical to any other approved or investigational therapy.