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ALN-SOD

Phase 1

Amyotrophic Lateral Sclerosis (ALS) | Small molecule | Neurology |Regeneron Pharmaceuticals, Inc.|Last Updated: Feb 27, 2026

Success Probability
Approval Probability 71%
TA Base Rate26%
Adjusted LOA41%
ML RiskLOW_RISK
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Market & Valuation
rNPV $3.2B
Market Size $9.4B
Revenue Basis $1.6B
Competitors 6
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Trial Design
RandomizedCONTROLLEDBiomarker
Total Trials1
Total Enrollment42
FDA Designations
No designations recorded
Clinical Trials (1)
NCT IDTitlePhaseStatusEnrollmentVelocityDesignStartCompletionLast UpdatedSitesCountries
NCT06351592First in Human (FIH) Study of ALN-SOD in Adult Participants With Amyotrophic Lateral Sclerosis Associated With Mutation in the SOD1 Gene (SOD1-ALS)PHASE1 RECRUITING 42Aug 28, 2024Jun 5, 2031Feb 27, 202616 Australia, Belgium +4
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Study Endpoints
Primary Endpoints
Incidence of Treatment-Emergent Adverse Event (TEAEs) in participants treated with ALN-SOD
At week 4 and through week 228
Severity of TEAEs in participants treated with ALN-SOD
At week 4 and through week 228
Secondary Endpoints
Concentration of Neurofilament Light chain (NfL) in plasma over time
Up to approximately week 228
Change in concentration of NfL in plasma over time
Up to approximately week 228
Concentration of SOD1 protein in Cerebrospinal Fluid (CSF) over time
Up to approximately week 228
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Study Design & Arms
AllocationRANDOMIZED
MaskingNONE
ModelSEQUENTIAL
PurposeTREATMENT
Treatment Arms
ArmTypeDescription
Cohort 1 - LowEXPERIMENTALPlacebo during 4-Week double-blind treatment period
Cohort 2 - Mid-DoseEXPERIMENTALPlacebo during 4-Week double-blind treatment period
Cohort 3 - High-DoseEXPERIMENTALPlacebo during 4-Week double-blind treatment period
Cohort 4 (Optional) - ≤ High DoseEXPERIMENTALPlacebo during 4-Week double-blind treatment period
Interventions
NameTypeDescription
ALN-SODDRUGAdministered per the protocol
DiluentOTHERAdministered per the protocol
Placebo (PB)DRUGAdministered per the protocol
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Eligibility Criteria
Age Range18 Years — N/A
SexALL
Healthy VolunteersNo
Study Sites16

Key Inclusion Criteria: 1. Weakness attributable to ALS and a SOD1 variant that has been previously described as associated with ALS or is considered likely to cause ALS, as defined in the protocol 2. Slow Vital Capacity (SVC) ≥50% predicted value based on age, gender and height, measured in uprigh...

Countries:AustraliaBelgiumCanadaJapanSouth KoreaTaiwan
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Recent Changes (Last 90 Days)
LOWMay 26, 2026NCT06351592primaryCompletionDate: changed
LOWMay 24, 2026NCT06351592studyFirstPostDate: changed