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rAAV2/5-PBGD vector dosage 1

Phase 1

Acute Intermittent Porphyria | Gene therapy | Rare Disease |uniQure N.V.|Last Updated: Dec 18, 2014

Success Probability

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Trial Design

CONTROLLEDDMCBiomarker
Total Trials1
Total Enrollment8

FDA Designations

No designations recorded

Clinical trial landscape

rAAV2/5-PBGD vector dosage 1 · 1 trial · 1 indication

Phase 1 1
NCT02082860Phase I Gene Therapy Clinical Trial Using the Vector rAAV2/5-PBGD for the Treatment of Acute Intermittent PorphyriaAcute Intermittent Porphyria
COMPLETED8 Analytics
PHASE1COMPLETED
Phase I Gene Therapy Clinical Trial Using the Vector rAAV2/5-PBGD for the Treatment of Acute Intermittent Porphyria
Acute Intermittent PorphyriaUnlock trial analytics

Study Endpoints

Primary Endpoints

Number of patients with Adverse Events and Serious Adverse Events
Up to 48 weeks

To assess the safety and determine the maximum therapeutic safe dose of the investigational gene therapy (GT) product rAAV2/5-PBGD for the treatment of AIP, registering and evaluating the occurrence of Adverse Events and/or Serious Adverse Events at the dose identified will be performed

Secondary Endpoints

Effect of the treatment on porphobilinogen (PBG) and delta-aminolevulinic acid (ALA) urinary level.
Up to 48 weeks
Clinical evolution of acute intermittent porphyria. Frequency of hospitalizations
Up to 48 weeks
Frequency of treatments for AIP symptoms
Up to 48 weeks
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Study Design & Arms

AllocationNON_RANDOMIZED
MaskingNONE
ModelSINGLE_GROUP
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
Cohort AEXPERIMENTALrAAV2/5-PBGD vector dosage 1
Cohort BEXPERIMENTALrAAV2/5-PBGD vector dosage 2
Cohort CEXPERIMENTALrAAV2/5-PBGD vector dosage 3
Cohort DEXPERIMENTALrAAV2/5-PBGD vector dosage 4

Interventions

NameTypeDescription
rAAV2/5-PBGD vector dosage 1GENETICIntravenous injection of rAAV2/5-PBGD vector, single administration on Day 1.
rAAV2/5-PBGD vector dosage 2GENETICIntravenous injection of rAAV2/5-PBGD vector, single administration on Day 1.
rAAV2/5-PBGD vector dosage 3GENETICIntravenous injection of rAAV2/5-PBGD vector, single administration on Day 1.
rAAV2/5-PBGD vector dosage 4GENETICIntravenous injection of rAAV2/5-PBGD vector, single administration on Day 1.
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Eligibility Criteria

Age Range18 Years to 64 Years
SexALL
Healthy VolunteersNo
Study Sites2

Inclusion Criteria: * Patient's written Informed Consent * Age between 18 and 64 years, inclusively. * Patients with confirmed diagnosis of Acute Intermittent Porphyria(AIP), as confirmed by clinical, biochemical data and genetic confirmation of porphobilinogen deaminase (PBGD) gene mutation. The p...

Countries:Spain
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Frequently asked questions about rAAV2/5-PBGD vector dosage 1

What is rAAV2/5-PBGD vector dosage 1 used for?

rAAV2/5-PBGD vector dosage 1 is an investigational gene therapy being studied for two rare diseases: Acute Intermittent Porphyria and Sanfilippo Syndrome B. It is in Phase 1 clinical development for both conditions.

Who makes rAAV2/5-PBGD vector dosage 1?

rAAV2/5-PBGD vector dosage 1 is being developed by uniQure N.V., a biopharmaceutical company traded on NASDAQ under the ticker QURE.

What phase is rAAV2/5-PBGD vector dosage 1 in?

rAAV2/5-PBGD vector dosage 1 is in Phase 1 clinical development. It is an investigational gene therapy and has not been approved by regulatory authorities.

What clinical trials is rAAV2/5-PBGD vector dosage 1 in?

rAAV2/5-PBGD vector dosage 1 has been studied in two completed Phase 1 trials. NCT02082860 enrolled 8 patients with Acute Intermittent Porphyria in Spain, and NCT03300453 enrolled 4 children with Sanfilippo Syndrome B in France.

What is the modality of rAAV2/5-PBGD vector dosage 1?

rAAV2/5-PBGD vector dosage 1 is a gene therapy, using an adeno-associated viral vector to deliver the PBGD gene. It is being developed for rare diseases.