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Iptacopan

Phase 3

Paroxysmal Nocturnal Hemoglobinuria | Small molecule | Hematology |Novartis AG|Last Updated: Jul 13, 2026

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Trial Design
UNCONTROLLED
Total Trials2
Total Enrollment260
FDA Designations
No designations recorded
Clinical trial landscape

Iptacopan · 15 trials · 14 indications

Phase 3 9Phase 2 5Phase 1 1
NCT06994845Study to Assess the Efficacy, Pharmacokinetics, Safety and Tolerability of Iptacopan in Pediatric Patients With Primary IgANPrimary Immunoglobulin A Nephropathy (IgAN)
RECRUITING31 Analytics
NCT06517758A Phase III Study to Investigate Efficacy, Safety and Tolerability of Iptacopan Compared With Placebo in Participants Aged 18 to 85 Years With gMG.Generalized Myasthenia Gravis
RECRUITING146 Analytics
NCT05935215Efficacy and Safety of Switching From Anti-C5 Antibody Treatment to Iptacopan Treatment in Study Participants With Atypical Hemolytic Uremic Syndrome (aHUS)Atypical Hemolytic Uremic Syndrome
RECRUITING50 Analytics
NCT05755386Study of Efficacy and Safety of Iptacopan in Participants With IC-MPGNIC-MPGN
RECRUITING106 Analytics
NCT05630001Single Arm, Open Label Trial With Iptacopan Treatment for 24 Weeks, in Patients on Stable Regimen of Anti-C5 Who Switch to Iptacopan.Paroxysmal Nocturnal Hemoglobinuria
COMPLETED52 Analytics
NCT04889430Efficacy and Safety of Iptacopan (LNP023) in Adult Patients With Atypical Hemolytic Uremic Syndrome Naive to Complement Inhibitor TherapyAtypical Hemolytic Uremic Syndrome
COMPLETED34 Analytics
NCT04817618Study of Efficacy and Safety of Iptacopan in Patients With C3 Glomerulopathy.C3G
RECRUITING98 Analytics
NCT04747613Long-term Safety and Tolerability of Iptacopan in Patients With Paroxysmal Nocturnal HemoglobinuriaParoxysmal Nocturnal Hemoglobinuria
ACTIVE NOT_RECRUITING208 Analytics
NCT04820530Study of Efficacy and Safety of Twice Daily Oral Iptacopan (LNP023) in Adult PNH Patients Who Are Naive to Complement Inhibitor TherapyParoxysmal Nocturnal Hemoglobinuria (PNH)
COMPLETED40 Analytics
PHASE3RECRUITING
Study to Assess the Efficacy, Pharmacokinetics, Safety and Tolerability of Iptacopan in Pediatric Patients With Primary IgAN
Primary Immunoglobulin A Nephropathy (IgAN)Unlock trial analytics
PHASE3RECRUITING
A Phase III Study to Investigate Efficacy, Safety and Tolerability of Iptacopan Compared With Placebo in Participants Aged 18 to 85 Years With gMG.
Generalized Myasthenia GravisUnlock trial analytics
PHASE3RECRUITING
Efficacy and Safety of Switching From Anti-C5 Antibody Treatment to Iptacopan Treatment in Study Participants With Atypical Hemolytic Uremic Syndrome (aHUS)
Atypical Hemolytic Uremic SyndromeUnlock trial analytics
PHASE3RECRUITING
Study of Efficacy and Safety of Iptacopan in Participants With IC-MPGN
IC-MPGNUnlock trial analytics
PHASE3COMPLETED
Single Arm, Open Label Trial With Iptacopan Treatment for 24 Weeks, in Patients on Stable Regimen of Anti-C5 Who Switch to Iptacopan.
Paroxysmal Nocturnal HemoglobinuriaUnlock trial analytics
PHASE3COMPLETED
Efficacy and Safety of Iptacopan (LNP023) in Adult Patients With Atypical Hemolytic Uremic Syndrome Naive to Complement Inhibitor Therapy
Atypical Hemolytic Uremic SyndromeUnlock trial analytics
PHASE3RECRUITING
Study of Efficacy and Safety of Iptacopan in Patients With C3 Glomerulopathy.
C3GUnlock trial analytics
PHASE3ACTIVE NOT_RECRUITING
Long-term Safety and Tolerability of Iptacopan in Patients With Paroxysmal Nocturnal Hemoglobinuria
Paroxysmal Nocturnal HemoglobinuriaUnlock trial analytics
PHASE3COMPLETED
Study of Efficacy and Safety of Twice Daily Oral Iptacopan (LNP023) in Adult PNH Patients Who Are Naive to Complement Inhibitor Therapy
Paroxysmal Nocturnal Hemoglobinuria (PNH)Unlock trial analytics
Study Endpoints
Primary Endpoints
Log-transformed ratio to Baseline in UPCR (based on FMV)
Baseline, Week 38

UPCR is measured based on the geometric mean of 2 FMVs obtained preceding each scheduled visit.

Change from baseline to Month 6 in Myasthenia Gravis Activity of Daily Living (MG-ADL) total score
Baseline to Month 6

The MG-ADL is an 8 item interviewer led patient reporting scale that assesses MG symptoms and their effects on daily activities. MG-ADL is composed of items related to patient's assessment of functional disability secondary to ocular (2 items), bulbar (3 items), respiratory (1 item), and gross motor or limb (2 items) impairment related to effects from MG. Each item is assessed on a 4-points scale where a score 0 represents normal function and a score 3 represents loss of ability to perform that function. The scores ranges from 0 to 24, with a higher score indicating more disability.

Percentage of participants free of TMA manifestation
12 months

Absence of thrombotic microangiopathy (TMA) manifestation, without use of anti-C5 antibody, during the 12 months of iptacopan treatment following the switch of treatment from an anti-C5 antibody to iptacopan treatment.

Log-transformed ratio to baseline in UPCR (sampled from a 24-hour urine collection) at 6 months.
6 months (double-blind)

To demonstrate the superiority of iptacopan compared to placebo in reducing proteinuria at 6 months.

Log-transformed ratio to baseline in UPCR at the 18-month visit (each study treatment arm)
18 months

To evaluate the effect of iptacopan on proteinuria at 18 months.

Log-transformed ratio to 12-month visit in UPCR at the 18-month visit in the placebo arm.
18 months

To evaluate the effect of iptacopan on proteinuria at 18 months.

Change in Hb Levels as Mean of Visits Between Day 126 and Day 168 Compared to Baseline Tested for Non-inferiority
Baseline, Day 126 to Day 168

Change in hemoglobin (Hb) levels as mean of visits between Day 126 and Day 168 compared to baseline. Baseline is defined as as the mean of three Hb assessments conducted at the central laboratory: two during screening and the third on Day 1. The estimation of change from baseline in Hb levels was handled by the hypothetical strategy where participants were assumed as if they did not receive RBC transfusions while on treatment (RBC transfusions were expected to be rare). Assuming that participants had stable Hb levels at study entry, the mean change from baseline in Hb level between Day 126 and Day 168 was expected to be unchanged should participants have continued on anti-C5 treatment. Non-inferiority of iptacopan was therefore tested by the null hypothesis (H0) against the alternate hypothesis (H1) comparing the mean change from baseline in Hb level in iptacopan between Day 126 and Day 168 (μ) to -1 g/dL: H0: μ \<= -1, H1: μ \> -1.

Percentage of participants with complete TMA response without the use of PE/PI and anti-C5 antibody
26 weeks of study treatment

The number/percentage of participants treated with iptacopan achieving complete thrombotic microangiopathy (TMA) response during 26 weeks of study treatment. Complete TMA Response is defined as (1) hematological normalization in platelet count (platelet count ≥150 x 10\^9/L) and LDH (below ULN), and (2) improvement in kidney function (≥ 25% serum creatinine reduction from baseline), maintained for two measurements obtained at least four weeks apart, and any measurement in between

Long term safety and efficacy evaluations
52 weeks of study treatment

Long term (one year) safety, tolerability and efficacy of iptacopan via 1) safety evaluations including adverse events/serious adverse events, safety laboratory parameters, vital signs etc. after 52 weeks of study treatment, and 2) efficacy evaluations including complete TMA response, hematological parameters (platelets, LDH, hemoglobin), eGFR, PROs after 52 weeks of study treatment

Adult cohort: Log-transformed ratio to baseline in UPCR (sampled from a 24-hour urine collection)
6 months (double-blind)

To demonstrate the superiority of iptacopan compared to placebo in reducing proteinuria at 6 months of treatment.

Adolescent cohort: Log-transformed ratio to baseline in UPCR (sampled from a 24-hour urine collection)
6 months (double-blind)

To evaluate the effect of iptacopan on proteinuria at 6 months.

Change from baseline in log-transformed UPCR at the 12-month visit (both study treatment arms).
12 months (double-blind and open-label)

To evaluate the effect of iptacopan on proteinuria at 12 months.

Change in log-transformed UPCR from the 6-month visit to the 12-month visit in the placebo arm
From month 6 to month 12 (open-label)

To evaluate the effect of iptacopan on proteinuria at 12 months.

Proportion of participants with adverse events
Up to 74 months

Safety evaluations including but not limited to adverse events/serious adverse events, safety laboratory parameters, vital signs, etc. through End of Study visit

Marginal Proportion (Expressed as Percentage) of Participants With Sustained Increase in Hemoglobin Levels From Baseline of ≥ 2 g/dL in the Absence of Red Blood Cell Transfusions
Baseline, hemoglobin between Day 126 and Day 168 and absence of transfusions between Day 14 and Day 168

Sustained increase in hemoglobin levels (responder) is defined as an increase from baseline in hemoglobin levels of ≥ 2 g/dL on three out of four measurements between Day 126 and 168 of the core treatment period, without requiring red blood cell (RBC) transfusions between Day 14 and Day 168. Requiring RBC transfusions refers to any patient receiving transfusions or meeting protocol defined criteria (Hemoglobin level of ≤9 g/dL (≤8 g/dL for Chinese population) with signs and or symptoms of sufficient severity to warrant a transfusion or Hemoglobin of ≤7 g/dL (≤6 g/dL for Chinese population), regardless of presence of clinical signs and/or symptoms). The term 'marginal proportion' can be interpreted as the population average probability of being a responder. Results incorporated a method to handle missing data using multiple imputation. Hence, all 40 patients enrolled contributed to the primary analysis.

Proportion of participants achieving a reduction of minimum one order of magnitude in complement C3c mesangial deposition.
BSL, Month 9

Mesangial C3c deposition is assessed by intensity of immunofluorescence (IF) staining using the following grading system: 0 (absent) 1 (+) 2 (++) 3 (+++)

Sustained remission through Week 48 defined as complete remission at Week 24 without major relapse up to Week 48.
At Week 48

To assess the effect of iptacopan in achieving sustained remission compared to standard of care (SOC)

Part 1 and 2: Proportion of patients achieving Complete Renal Response (CRR) at week 24 in the absence of renal flares
Baseline and week 24

Part 1: To evaluate the proportion of patients achieving complete renal response with iptacopan treatment "A" plus standard of care, compared to treatment alone Part 2: To evaluate the proportion of patients achieving complete renal response with Iptacopan treatment "B" plus standard of care, compared to treatment "D" alone Part 2: To evaluate the proportion of patients achieving complete renal response with Iptacopan treatment "C" plus standard of care, compared to treatment "D" alone Complete Renal Response is defined as meeting the following criteria: estimated glomerular filtration rate (eGFR) ≥ 90 mL/min/1.73 m2 or no less than 85% of baseline value, and 24h urine protein-to-creatinine ratio (UPCR) ≤ 0.5 g/g.

Development of new incomplete retinal pigment epithelium & outer retinal atrophy or late age-related macular degeneration (AMD) in the early/intermediate AMD eye as determined by optical coherence tomography (OCT) & supported by multimodal imaging
Baseline/Day 1 through Month 24

OCT and other imaging will be performed using spectral domain OCT or swept source OCT machines

Percent Change From Baseline in Lactate Dehydrogenase (LDH) Level at Day 92
Baseline and Day 92

Serum LDH was used as an intravascular hemolysis marker to assess the effect of iptacopan on the reduction of chronic hemolysis in paroxysmal nocturnal hemoglobinuria (PNH) patients when administered in addition to SoC (monoclonal antibody with anti C5 activity) Baseline is defined as the mean of the last 3 measurements prior to dose administration.

Pharmacokinetic parameters of iptacopan: Cmax The maximum (peak) observed plasma, blood, serum, or other body fluid drug concentration after single dose administration (mass × volume-1)
Day 1 (few time points), Day 2, Day 3, Day 4, Day 5, Day 6, Day 7, Day 8, Day 9, Day 10 and Day 11

To assess the PK properties of iptacopan after a single oral dose of 200 mg in participants with mild, moderate, or severe hepatic impairment as compared to matched healthy participants with normal hepatic function (Child-Pugh classification).

Pharmacokinetics parameters of iptacopan: Tmax The time to reach maximum (peak) plasma, blood, serum, or other body fluid drug concentration after single dose administration (time)
Day 1 (few time pints), Day 2, Day 3, Day 4, Day 5, Day 6, Day 7, Day 8, Day 9, Day 10 and Day 11

To assess the PK properties of iptacopan after a single oral dose of 200 mg in participants with mild, moderate, or severe hepatic impairment as compared to matched healthy participants with normal hepatic function (Child-Pugh classification).

Pharmacokinetic parameters of iptacopan: AUClast The AUC from time zero to the last measurable concentration sampling time (tlast) (mass × time × volume-1)
Day 1 (few time points), Day 2, Day 3, Day 4, Day 5, Day 6, Day 7, Day 8, Day 9, Day 10 and Day 11

To assess the PK properties of iptacopan after a single oral dose of 200 mg in participants with mild, moderate, or severe hepatic impairment as compared to matched healthy participants with normal hepatic function (Child-Pugh classification).

Pharmacokinetics parameters of iptacopan: AUCinf The AUC from time zero to infinity (mass × time × volume-1)
Day 1 (few time points), Day 2, Day 3, Day 4, Day 5, Day 6, Day 7, Day 8, Day 9, Day 10 and Day 11

to assess the PK properties of iptacopan after a single oral dose of 200 mg in participants with mild, moderate, or severe hepatic impairment as compared to matched healthy participants with normal hepatic function (Child-Pugh classification).

Secondary Endpoints
Pharmacokinetic Parameter Cmax in Plasma
Week 12 (Pre-dose (0), 2, 4, 6, and 8 hours post-dose)
Pharmacokinetic Parameter AUClast in Plasma
Week 12 (Pre-dose (0), 2, 4, 6, and 8 hours post-dose)
Pharmacokinetic Parameter AUCtau in Plasma
Week 12 (Pre-dose (0), 2, 4, 6, and 8 hours post-dose)
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Study Design & Arms
AllocationNA
MaskingNONE
ModelSINGLE_GROUP
PurposeTREATMENT
Treatment Arms
ArmTypeDescription
iptacopanEXPERIMENTALParticipants in Cohort 1 (12 to \< 18 years old) will receive iptacopan at the dose of 200 mg twice per day. Participants in Cohort 2 (2 to \< 12 years old) will receive iptacopan at a dose tbd.
Matching PlaceboPLACEBO_COMPARATORPlacebo orally for 6 months (double-blind) followed by open-label iptacopan for up to 60 months
iptacopan 200 mg b.i.d.EXPERIMENTALopen label arm of iptacopan 200 mg b.i.d.
iptacopan 200mg b.i.dEXPERIMENTALiptacopan 200mg b.i.d
Placebo to iptacopan 200mg b.i.d.PLACEBO_COMPARATORPlacebo to iptacopan 200mg b.i.d.
LNP023 200mg b.i.d.EXPERIMENTALIptacopan (LNP023) at a dose of 200 mg b.i.d. orally
Iptacopan 200 mg b.i.dEXPERIMENTALSingle arm open-label with 50 adult patients receiving 200mg oral twice daily doses of iptacopan
iptacopan 200mgEXPERIMENTALiptacopan 200 mg b.i.d.
Placebo to iptacopan 200mgPLACEBO_COMPARATORPlacebo to iptacopan 200mg b.i.d.
LNP023EXPERIMENTALParticipants receive LNP023 at a dose of 200 mg orally b.i.d
ControlPLACEBO_COMPARATORMatching placebo
Iptacopan + standard of care (part 1)ACTIVE_COMPARATORIptacopan + standard of care
Placebo matching iptacopan + standard of care (part 1)PLACEBO_COMPARATORPlacebo matching iptacopan standard of care
Iptacopan + standard of care (part 2)ACTIVE_COMPARATORIptacopan + standard of care
Iptacopan + placebo (part 2)ACTIVE_COMPARATORIptacopan + placebo standard of care
Placebo matching iptacopan + standard of care (part 2)ACTIVE_COMPARATORPlacebo matching iptacopan + standard of care
Iptacopan (LNP023)EXPERIMENTALIptacopan (LNP023) oral use capsules
PlaceboPLACEBO_COMPARATORPlacebo matched to study drug, oral use capsules
Cohort 1: LNP023 200mg bid + SoCEXPERIMENTALOrally administered iptacopan 200 mg b.i.d. in Part 1 and Part 2
Cohort 2: LNP023 50mg/200mg bid + SoCEXPERIMENTALOrally administered iptacopan 50 mg b.i.d. for a minimum of 2 weeks in addition to SoC; this could be increased to iptacopan 200 mg b.i.d. at study day 15 or at any time later in the study if LDH was not within limit of normal or reduced by at least 60% as compared to baseline values.
Healthy participantsEXPERIMENTALIptacopan 200 mg single dose
Mild hepatic impairment patientsEXPERIMENTALIptacopan 200 mg single dose
Moderate hepatic impairment patientsEXPERIMENTALIptacopan 200 mg single dose
Severe hepatic impairment patientsEXPERIMENTALIptacopan 200 mg single dose
Interventions
NameTypeDescription
iptacopanDRUGCohort 1 (12 to \< 18 years of age): Iptacopan 200 mg b.i.d.(twice daily) Cohort 2 (2 to \< 12 years old): Dosing tbd
Matching PlaceboOTHERHard gelatin capsule
PlaceboDRUGPlacebo to iptacopan 200mg b.i.d. (Adults 200mg b.i.d; Adolescents 2x 100mg b.i.d)
Iptacopan (LNP023)DRUGTaken orally b.i.d. Dosage supplied: 200mg Dosage form: Hard gelatin capsule Route of Administration: oral
RituximabDRUGStandard of care
Iptacopan (part 1)DRUGTaken for 52 Weeks
Iptacopan (part 2)DRUGTaken for 52 Weeks
Placebo + standard of careDRUGTaken for 52 Weeks
Iptacopan + placeboDRUGTaken for 52 Weeks
Standard of CareCOMBINATION_PRODUCTStandard of Care (SoC) is defined as an antibody with anti C5 activity. At the time of study start, eculizumab was the only available SoC; eculizumab will be hereafter referred to as SoC.
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Eligibility Criteria
Age Range2 Years to 18 Years
SexALL
Healthy VolunteersNo
Study Sites17

Inclusion Criteria: * Male and female participants 2 to \< 18 years of age as of Day 1. * eGFR ≥ 30 mL/min/1.73m2 where eGFR is calculated using the modified Schwartz formula at Screening and confirmed during the Run-in Period. * Kidney biopsy-proven primary IgAN\*, with biopsy performed within 3 y...

Countries:United StatesAustraliaChinaHong KongIsraelJapanSaudi ArabiaArgentinaBrazilDenmarkFranceGermanyGreeceItalyPolandPortugalSerbiaSouth KoreaSpainUnited KingdomTurkey (Türkiye)CanadaCzechiaIndiaNetherlandsSlovakiaSwitzerlandTaiwanVietnamBelgiumLithuaniaMalaysiaSingaporeAustriaHungaryColombiaMexicoPhilippinesPuerto Rico
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Recent Changes (Last 90 Days)
LOWJul 13, 2026NCT04817618lastUpdatePostDate: changed
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