Recent Updates
Recently added Catalysts

BB-301: Dose expansion phase 2a

Phase 1

Oculopharyngeal Muscular Dystrophy | Gene therapy | Neurology |Benitec Biopharma Inc.|Last Updated: Dec 31, 2025

Success Probability

Subscribe to view

Market & Valuation

Subscribe to view

Trial Design

UNCONTROLLEDDMC
Total Trials1
Total Enrollment30

FDA Designations

FAST_TRACKORPHAN_DRUG

Clinical trial landscape

BB-301: Dose expansion phase 2a · 1 trial · 1 indication

Phase 1 1
NCT06185673A Study to Evaluate the Safety and Clinical Activity of Intramuscular Doses of BB-301 Administered to Subjects With Oculopharyngeal Muscular Dystrophy With DysphagiaOculopharyngeal Muscular Dystrophy
RECRUITING30 Analytics
PHASE1RECRUITING
A Study to Evaluate the Safety and Clinical Activity of Intramuscular Doses of BB-301 Administered to Subjects With Oculopharyngeal Muscular Dystrophy With Dysphagia
Oculopharyngeal Muscular DystrophyUnlock trial analytics

Study Endpoints

Primary Endpoints

Incidence of dose-limiting toxicities (DLTs) in phase 1b
Up to 60 days

A DLT will be defined using the National Cancer Institute (NCI) Common Terminology Criteria for Adverse Events (CTCAE) v5.0, as follows: • Any Grade 2 toxicity not resolving within 14 days or any Grade 3 toxicity, assessed to be possibly related to the investigational product.

Incidence of adverse events (AEs) according to NCI CTCAE v5.0 in phase 1b and in phase 2a
Up to 360 days

For this outcome measure, AEs arising in the 360 days following administration of BB-301 will be considered. Long term AEs will be monitored for 15 years following subject dosing.

Phase 1b: Swallowing efficiency as measured by Vallecular Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The Analysis of Swallowing Physiology: Events, Kinematics and Timing (ASPEKT) method will be used to determine Vallecular Residue %(C2-4)\^2.

Phase 1b: Swallowing efficiency as measured by Pyriform Sinus Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The ASPEKT method will be used to determine Pyriform Sinus Residue %(C2-4)\^2.

Phase 1b: Swallowing efficiency as measured by Other Pharyngeal Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The ASPEKT method will be used to determine Other Pharyngeal Residue %(C2-4)\^2.

Phase 1b: Swallowing efficiency as measured by Total Pharyngeal Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The ASPEKT method will be used to determine Total Pharyngeal Residue %(C2-4)\^2.

Phase 1b: Pharyngeal constrictor muscle function as estimated by the pharyngeal area at maximum constriction (PhAMPC)
Baseline, Day 90, Day 180, Day 270, Day 360

Videofluoroscopy will be used to characterize the area of the pharynx at the point of maximum constriction during swallowing. The PhAMPC uses the videofluoroscopy frame of maximum pharyngeal constriction, defined as the frame with the smallest amount of unobliterated air space and barium-containing bolus visible in the pharynx. The pixelated area of the frame of maximum constriction is normalized via the use of the C2-C4 length squared (i.e., \[C2-4\]\^2) as the denominator.

Phase 2a: Swallowing efficiency as measured by Vallecular Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The ASPEKT method will be used to determine Vallecular Residue %(C2-4)\^2.

Phase 2a: Swallowing efficiency as measured by Pyriform Sinus Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The ASPEKT method will be used to determine Pyriform Sinus Residue %(C2-4)\^2.

Phase 2a: Swallowing efficiency as measured by Other Pharyngeal Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The ASPEKT method will be used to determine Other Pharyngeal Residue %(C2-4)\^2.

Phase 2a: Swallowing efficiency as measured by Total Pharyngeal Residue %(C2-4)^2
Baseline, Day 90, Day 180, Day 270, Day 360

Pharyngeal residue in discrete anatomical locations will be assessed by applying a method that uses a common reference area across all residue locations, with residue area expressed as a percentage of the squared C2-C4 length reference scalar. The ASPEKT method will be used to determine Total Pharyngeal Residue %(C2-4)\^2.

Phase 2a: Pharyngeal constrictor muscle function as estimated by PhAMPC
Baseline, Day 90, Day 180, Day 270, Day 360

Videofluoroscopy will be used to characterize the area of the pharynx at the point of maximum constriction during swallowing. The PhAMPC uses the videofluoroscopy frame of maximum pharyngeal constriction, defined as the frame with the smallest amount of unobliterated air space and barium-containing bolus visible in the pharynx. The pixelated area of the frame of maximum constriction is normalized via the use of the C2-C4 length squared (i.e., \[C2-4\]\^2) as the denominator.

Secondary Endpoints

Phase 1b: Global swallowing function as measured by the Dynamic Imaging Grade of Swallowing Toxicity (DIGEST) scale
Baseline, Day 90, Day 180, Day 270, Day 360
Phase 1b: Swallowing efficiency as measured by the Normalized Residue Ratio Scale (NRRS)
Baseline, Day 90, Day 180, Day 270, Day 360
Phase 1b: Pharyngeal constrictor muscle function as estimated by the Pharyngeal Constriction Ratio (PCR)
Baseline, Day 90, Day 180, Day 270, Day 360
Unlock Study Endpoints

Study Design & Arms

AllocationNA
MaskingNONE
ModelSINGLE_GROUP
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
BB-301 TreatmentEXPERIMENTALThe phase 1b component of the study is the dose escalation phase which will enroll up to 18 subjects in up to 3 dosing cohorts. The phase 2a component of the study is the dose expansion phase which will enroll up to 12 subjects.

Interventions

NameTypeDescription
BB-301: Dose escalation phase 1b cohort 1GENETICBB-301 is composed of an AAV9 capsid, AAV9PL, which delivers the gene of interest, comprised of a recombinant genome encoding a single RNA transcript that produces a codon-optimized, wildtype PABPN1 protein as well as 2 short hairpin (sh)RNAs directed against the disease-causing mutant PABPN1 gene. Subjects in cohort 1 in the dose escalation phase of the study will receive a fixed number of intramuscular (IM) injections of BB-301 into the respective pharyngeal constrictor muscles on the day of dosing, with a total dose of 1.2e13 vg/subject.
BB-301: Dose escalation phase 1b cohort 2GENETICBB-301 is composed of an AAV9 capsid, AAV9PL, which delivers the gene of interest, comprised of a recombinant genome encoding a single RNA transcript that produces a codon-optimized, wildtype PABPN1 protein as well as 2 shRNAs directed against the disease-causing mutant PABPN1 gene. Subjects in cohort 2 in the dose escalation phase of the study will receive a fixed number of IM injections of BB-301 into the respective pharyngeal constrictor muscles on the day of dosing, with a total dose of 1.8e13 vg/subject.
BB-301: Dose escalation phase 1b cohort 3GENETICBB-301 is composed of an AAV9 capsid, AAV9PL, which delivers the gene of interest, comprised of a recombinant genome encoding a single RNA transcript that produces a codon-optimized, wildtype PABPN1 protein as well as 2 shRNAs directed against the disease-causing mutant PABPN1 gene. Subjects in cohort 3 in the dose escalation phase of the study will receive a fixed number of IM injections of BB-301 into the respective pharyngeal constrictor muscles on the day of dosing, with a total dose per subject to be determined following the completion of cohort 1 and cohort 2.
BB-301: Dose expansion phase 2aGENETICSubjects in the dose expansion phase of the study will receive a fixed number of IM injections of BB-301 into the respective pharyngeal constrictor muscles on the day of dosing, at the maximum tolerated dose (MTD)/recommended phase 2 dose (RP2D).
Unlock Study Design Details

Eligibility Criteria

Age RangeN/A to 65 Years
SexALL
Healthy VolunteersNo
Study Sites1

Inclusion Criteria: * Subject was previously enrolled in the BNTC-OPMD-NH-001 natural history (NH) study and completed at least 6 months of follow-up in the NH study. * Signed written informed consent prior to the initiation of any study-specific procedures. * Males or females, aged ≥50 to ≤65 year...

Countries:United States
Unlock Eligibility Criteria

Frequently asked questions about BB-301: Dose expansion phase 2a

What is BB-301 used for?

BB-301 is an investigational gene therapy being developed for the treatment of oculopharyngeal muscular dystrophy (OPMD), a rare neuromuscular disorder that causes progressive weakness of the throat and eyelid muscles, leading to difficulty swallowing. It is administered via intramuscular injection and is currently in clinical development.

How does BB-301 work?

BB-301 is a gene therapy designed to deliver a functional copy of a gene to muscle cells affected by oculopharyngeal muscular dystrophy. The therapy aims to correct the underlying genetic defect that causes the disease, potentially slowing or halting disease progression. It is administered directly into the affected muscles.

Who is developing BB-301?

BB-301 is being developed by Benitec Biopharma Inc., a biopharmaceutical company focused on gene therapies. The company's stock is traded under the ticker symbol BNTC. Benitec is conducting clinical trials to evaluate the safety and efficacy of BB-301 in patients with oculopharyngeal muscular dystrophy.

What phase is BB-301 in?

BB-301 is currently in Phase 1 clinical development. It is an investigational drug, meaning it has not yet been approved by regulatory authorities. The ongoing Phase 1 trial is designed to assess the safety and clinical activity of the therapy in patients with oculopharyngeal muscular dystrophy.

What clinical trials is BB-301 in?

BB-301 is being evaluated in a Phase 1 clinical trial registered as NCT06185673. This study is recruiting participants with oculopharyngeal muscular dystrophy and dysphagia (difficulty swallowing) in the United States. The trial is uncontrolled, meaning there is no placebo or comparator group, and aims to enroll approximately 30 participants.

Has BB-301 received FDA designations?

BB-301 has received Fast Track and Orphan Drug designations from the U.S. Food and Drug Administration (FDA). These designations are intended to expedite the development and review of therapies for serious conditions and to provide incentives for the treatment of rare diseases.