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ORGN001

Phase 2

Molybdenum Cofactor Deficiency, Type A | Small molecule | Other |BridgeBio Pharma, Inc.|Last Updated: Oct 17, 2023

Success Probability

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Market & Valuation

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Trial Design

UNCONTROLLEDDMCBiomarker
Total Trials2
Total Enrollment13

FDA Designations

No designations recorded

Clinical trial landscape

ORGN001 · 2 trials · 1 indication

Phase 2 2
NCT02629393Study of ORGN001 (Formerly ALXN1101) in Neonates, Infants and Children With Molybdenum Cofactor Deficiency (MOCD) Type AMolybdenum Cofactor Deficiency, Type A
COMPLETED5 Analytics
NCT02047461Safety & Efficacy Study of ORGN001 (Formerly ALXN1101) in Pediatric Patients With MoCD Type A Currently Treated With rcPMPMolybdenum Cofactor Deficiency, Type A
COMPLETED8 Analytics
PHASE2COMPLETED
Study of ORGN001 (Formerly ALXN1101) in Neonates, Infants and Children With Molybdenum Cofactor Deficiency (MOCD) Type A
Molybdenum Cofactor Deficiency, Type AUnlock trial analytics
PHASE2COMPLETED
Safety & Efficacy Study of ORGN001 (Formerly ALXN1101) in Pediatric Patients With MoCD Type A Currently Treated With rcPMP
Molybdenum Cofactor Deficiency, Type AUnlock trial analytics

Study Endpoints

Primary Endpoints

Overall Survival
Through last observation (average of 24 months)

Patients with a confirmed diagnosis of MOCD Type A, treated with ORGN001 and still alive at last observation.

Safety of ORGN001 (Formerly ALXN1101)
Baseline to Month 24 for all patients plus additional follow-up up to Month 90

Treatment Emergent Serious Adverse Events

Secondary Endpoints

Feeding Pattern
At Month 12 visit
Pharmacokinetics (Actual Plasma Concentration) of ORGN001 (Formerly ALXN1101)
First 6 months at each dose level, where available
S-sulfocysteine (Umol/L) Normalized to Urine Creatinine (mmol/L) - Change From Baseline Over Time
Baseline to Month 24 for all patients plus additional follow-up to Month 90
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Study Design & Arms

AllocationNA
MaskingNONE
ModelSINGLE_GROUP
PurposeTREATMENT

Treatment Arms

ArmTypeDescription
ORGN001 (formerly ALXN1101)EXPERIMENTAL -

Interventions

NameTypeDescription
ORGN001 (formerly ALXN1101)DRUG -
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Eligibility Criteria

Age Range1 Day to 5 Years
SexALL
Healthy VolunteersNo
Study Sites11

Patients must meet all of the following inclusion criteria to be considered for enrollment in this study: 1. Male or female neonatal patient (1 to 28 days of age \[inclusive\] at the time of ORGN001 administration, with day 1 of age corresponding to the day of birth) or infant (29 days to \<2 years...

Countries:United StatesIsraelNorwaySpainTurkey (Türkiye)United KingdomAustraliaNetherlandsTunisia
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Frequently asked questions about ORGN001

What is ORGN001 used for?

ORGN001 is an investigational small molecule being developed for Molybdenum Cofactor Deficiency, Type A, a rare genetic disorder. It is currently in Phase 2 clinical development and has not been approved by the FDA. The drug is intended to address the underlying metabolic defect in patients with this condition.

Who makes ORGN001?

ORGN001 is being developed by BridgeBio Pharma, Inc., a biopharmaceutical company traded on NASDAQ under the ticker BBIO. The company is conducting clinical trials to evaluate the safety and efficacy of ORGN001 in patients with Molybdenum Cofactor Deficiency, Type A.

What phase is ORGN001 in?

ORGN001 is in Phase 2 clinical development. It is an investigational drug and has not been approved by regulatory authorities. Two Phase 2 trials have been completed, with a total of 13 participants enrolled across multiple countries.

What clinical trials is ORGN001 in?

ORGN001 has been studied in two completed Phase 2 trials. NCT02047461 enrolled 8 pediatric patients with Molybdenum Cofactor Deficiency Type A, while NCT02629393 enrolled 5 neonates, infants, and children with the same condition. Both trials were uncontrolled and not blinded.

Is ORGN001 the same as ALXN1101?

Yes, ORGN001 was formerly known as ALXN1101. The clinical trials NCT02047461 and NCT02629393 both reference the drug as ORGN001, formerly ALXN1101, indicating that the names refer to the same investigational compound.